By Jody Mace
“It looks like you’ve got a horn growing on your face.”
That’s what the dermatologist says—literally says—to my father. A horn. I hadn’t thought of the growth as a horn until this moment, and now I wish I had looked at it more closely, even though it’s the kind of thing I don’t generally like to get too close to. I thought it was a big wart or a skin tag, or maybe a weird looking skin cancer, but I hadn’t considered that it might be a horn. I won’t get another chance to look at it, because the dermatologist cuts it off with no ceremony or drama—just a quick shot of Novocain and he starts digging it out. He’s done in five minutes. A horn on someone’s face is not a big deal to dermatologists. They’ve seen worse.
I should have said, actually, that I don’t get another chance to look at it attached to my father’s face, because the doctor shows it to me in a little vial, suspended in pinkish liquid.
He’s sending it off to the lab. Right now, the horn could be skin cancer or not.
Either way, the dermatologist isn’t concerned. He says, “There’s nothing to worry about. If it’s skin cancer we’ll take care of that, too.”
Maybe cancers that take the form of horns are easy to treat. Or maybe dermatologists just don’t get that worked up about eighty-four-year-olds who may or may not have skin cancer.
When I get home I google “people with horns growing on their faces” and it’s an eye-opener. You can’t mistake them for anything else because they are clearly horn-shaped. They’re hard, like dark, super-charged fingernails, and they’re huge. There are all kinds of horns, each resembling the horn of a different animal. Elk, moose, goats. Some curl up in a spiral, like they were designed by Dr. Seuss. Just when you think you have a handle on all of the ways human bodies can go wrong, you learn something new.
By taking my dad to the dermatologist while his horn was so little I saved him from possibly ending up with a giant horn, which would have been (presumably) more difficult to remove. Nobody gives you a medal for that though.
I send my dad the link to the page of pictures of people with horns. I tell him, “If I didn’t take you to get your horn removed, it might have ended up like one of these.”
He correctly points out, “We’ll never know how my horn would have turned out because we cut it off.”
Right now, his horn is in a vial being looked at to see if it’s cancer or not. It might be cancer and it might not be. It’s one or the other, but at this very moment it could be either. We have to consider both possibilities.
It’s like Schrödinger’s Cat. A couple of smart people have explained this to me and I still don’t understand it, because a cat is alive or dead, not both, no matter if we know it or not. But the relevant point here is that since we don’t know, we need to treat it as if it’s both alive and dead. You need to cover all the bases.
•••
In the days leading up to this dermatologist appointment, my father, who has early Alzheimer’s, took it upon himself to make a dentist appointment the same day. His dentist is in the same medical park as the dermatologist and, coincidentally, has the same last name too.
“They must be brothers,” my father tells me every time he calls me about the appointment, which is more times than you might imagine.
“They might not be,” I say, because that’s the truth.
But they are. We learn that because when we get to the dermatologist’s office, the dentist’s office is right across the hall and my dad says to the dermatologist’s receptionist, “I have a question. Is the dentist across the hall related to the dermatologist?” and she says yes, they’re brothers.
Three minutes later as I’m filling out his medical history form, he goes up to the receptionist and says, “I have a question. Is the dentist across the hall related to the dermatologist?” and she says yes, they’re brothers.
A minute later, before I finish the form, he goes up to the receptionist and says, “I have a question. Is the dentist across the hall related to the dermatologist?” and she says yes, they’re brothers.
This time she gives me a long look and when I quietly ask her if she could call me instead of my dad with the results, she quickly agrees.
Because he made the appointment with the dentist for the same day as this appointment, but four hours later, and because I don’t have time to stick around all day, my dad has formulated a plan. He will walk across a busy road with no crosswalks and have lunch at a shopping center, and then will walk back afterwards, find the dentist again in this medical park, which is the most complicated medical park in the world.
I have told him several times that this was not a safe plan, but he assured me that he did this kind of thing all the time, and had been an officer in the U.S. Air Force and flew several kinds of complicated airplanes and he could certainly manage crossing the street. I had put off the argument for later because I was so tired of talking about it.
He mentions this plan to the nurse once we’re in the doctor’s office, and she says, “No, you won’t. You’ll get killed, and even if you don’t, you’ll never find your way back here.”
He replies, “Oh!” and looks truly surprised.
“No, I’ll drive you to lunch and then I’ll drive you back here,” I say, even though I really don’t have time. I agree with the nurse. It was a crazy plan. But, also, I’m aware that I would seem neglectful if I let him do it, and I’m sensitive about looking neglectful.
My choices are to piss him off or to look neglectful to everyone else in the world.
It seems like there’s only one right answer. I have to keep him safe. But it’s so much more complicated. It’s difficult to know at any given moment if he should no longer be doing something he used to be able to handle. I have power of attorney, and, sure, I can play it safe, err on the side of caution, but every little freedom that he loses diminishes him a little more.
He’s stopped driving. Although he’s in “independent living” at his senior living home, someone comes to his apartment twice a day to make sure he takes his pills. I started handling his banking after he made a few concerning mistakes with his money. He’s unhappy with all of these changes.
When an older person wanders off and gets lost, it ends up in the news, and the reaction in the comment section is predictable. “Someone should have been watching him!” Just like when a kid is allowed to walk home from school by herself (imagine!) and something bad happens. “I’d never let my kid walk around without supervision! Bad parents!” The online judgment comes fast and hard.
The problem is, until the older person goes missing or something happens to the kid, you don’t know for sure that it’s not safe to let them do this thing that they want to do. Maybe the kid is ready. Maybe the elderly parent is still able to take an unsupervised walk. How do you know? Maybe this will be the last time he can do it.
With Schrödinger’s Cat, the way it works is this: the cat is in a steel box. Also in the box are a radioactive substance, a vial of poison, a Geiger counter, and a hammer. When the radioactive substance decays, the Geiger counter detects that and makes a hammer smash the vial, releasing the poison, killing the cat. But the thing is, you have no idea when the radioactive substance will decay. So at any given time you don’t know if the cat is alive or dead.
It’s the same thing with elderly parents with dementia. Until something goes wrong—they mess up the bank account, they forget to take their pills, they get lost—you don’t know that the decay has gotten to that point. If you wait too long to start giving them that extra supervision, there can be a disaster. If you jump the gun, you’re taking away some of their quality of life before you need to.
After the appointment I drive him to the shopping center and we have lunch. Then I drive him to the dentist. It will be two and a half hours until his appointment. I can’t stay. The home where he lives provides rides to and from doctor’s appointments, so I have him call and request a ride, but he can’t get anyone on the phone.
“Try again,” I say, because I don’t want to leave him without a ride.
“It’ll work out,” he says. It’s one of his favorite things to say and it drives me insane. It happens all the time. He tells me about a problem and asks for help. Something with his computer, or his phone or TV, or something more important. Maybe his knee is bothering him. I start looking into it, but before I can do anything he says, “It’ll work out.”
It works out because I make it work out, not because it magically works out.
He assures me, though, that he will just call again after the appointment and get the ride. I tell him to let me know if he can’t get through. Then I leave and drive the forty minutes to get home.
That night he calls me and says that he never got through so he walked across a major road, this one with a crosswalk, at least, to catch a bus back home. He got on the right bus, had cash for the fare, got off at the right stop, and crossed the road again to get home.
“It all worked out,” he says.
•••
Three days after the appointment we get an answer about the horn. The dermatologist says it’s benign.
•••
JODY MACE is a freelance writer living in North Carolina. Her essays have appeared in O Magazine, Brain, Child, The Washington Post, and many other publications, as well as several anthologies. Her website is jodymace.com. She publishes the website Charlotte on the Cheap in Charlotte, North Carolina. She is a regular contributor to Full Grown People.
Oh, wow, as someone whose mom had Alzheimer’s, the truth of this whole piece was both piercing and comforting. Really enjoyed reading it.
I love this!!!!!!!
I am flooded with memories of caring for my dad, former Naval Officer and Engineer (a deadly duo for any daughter who tries to have an emotional – not logical- opinion). He did not have ALZ. Sometimes I wondered if that would have been easier to deal with.
The memories cause me to relive those long years when I didn’t know which one of us would die first – me or Dad. Or which one of us might go to jail for premeditated murder. I’m also reminded that while my dad was alive, I wrote a blog, journaling the good and the bad of caregiving. When my father died my words dried up. I go back occasionally, promising myself I’ll get back on the saddle. The truth is I miss my words as much as I miss my father.
ME
P.S. I’ve never heard of people having horns, or Schrödinger’s Cat. I’d also never heard of the spacial oddity disorder (the name of which I can’t say or remember how to spell) explained in an article a few weeks ago. I am not only entertained by these stories but am being educated on an interesting array of topics. Thank you.
I’m sitting here shouting, “yes!” Because I’m going through this with my dad and it’s all too familiar, especially having to choose between passing them off and being neglectful. Thank you for this.
Make that passing them off.
Pissing!