Last winter, my friend Pete gave me a pair of Vic Firth 5A drumsticks. They were beginner’s sticks, but this would be my first drum lesson: he the teacher, me the novice. I was ready: I’d diligently watched You Tube videos demonstrating Ringo Starr’s and Stevie Wonder’s drumming and listened closely to the drum parts on my favorite CDs. The sticks were surprisingly light, awkward to hold, and pleasantly dinged up. They made me nervous.
I’d agreed to spend a weekend participating in a rock camp for women, a fundraiser for national group empowering teen girls through playing music. I’ve always been a music lover: my very first concert was The Beatles at Shea, even though I was five and the frustratingly sonically obscured objects of my adoration sang from my parents’ portable black and white Zenith television. My younger sister Susie and I listened to our recording of “Peter and The Wolf” on the turntable and acted out the roles. At six, I was the bassoon grandfather, and she, not quite two years younger, the clarinet cat. As I grew, I learned to lose myself in vocals; first John and Paul’s tricky harmonies and later, Mick Jagger’s sneering whine.
My youngest sister Sarah played Satie gymnopedies and Bach for four hands on the piano with Mom. Dad bellowed Dylan as he drove. As a teen, I played guitar reasonably well, piano terribly. I learned all the words to “Stairway to Heaven.” In my thirties, I auditioned once as a singer for a local band; I wiped out not because I couldn’t sing, but because I can’t read music.
And all along, I secretly banged on things. Hard. Usually myself. In elementary school, I beat my head on my bedroom floor until I was dizzy. I tore out handfuls of my hair to distract myself from the way my skin felt, rippling in anger. Enraged and inconsolable in my teens, I punched plaster walls and slammed car doors. In high school, I quietly broke my own finger in an effort to suppress boiling rage and brokenhearted sorrow. And no one ever knew.
My sisters were dying and then dead; first Susie, at eight from leukemia, and then, Sarah twenty-three years later, from an illness related to the rare blood disorder she’d been born with. Our father muted his sorrow with anger, drugs, and alcohol before he left for a job in another country and then a new life. Mom remained determined, loving, and honestly joyful about the best moments of our lives.
When I checked the box beside “drums” on the camp registration form, forty-four years had passed since Susie died, and twenty-two since Sarah’s death. Dad died in 2002, and Mom two years ago. That frantic and sudden need for a physical outlet for my pain and sorrow still lurked close to my surface. I know that self-harm, like hitting or, for others, cutting, is an attempt to seek relief for emotional pain: simple reading tells me that, but I sensed as much when I was ten. Now that I’m grown, reasonably competent, and happily married, my hitting myself until I bruised, or once, driving so fast that I pinned the red on my Honda’s speedometer, freaked my husband out. I didn’t blame him. My periods of desolation were awful for me to live with, too. But banging on drums in a band scared me almost as much. I worried about what I might unleash.
Mickey and I met and fell in love shortly after my sister Sarah died. I was working as a production manager for television programs, and he wrote and produced promos. We didn’t work together, so he only heard from me about the time I blew up and threw a stapler at an assistant. (I missed, thank heavens.) He already knew my reputation on the job as a screamer and a yeller. With him, I was never those things. He calmed me and made me feel safe and loved enough. Music mattered to him, too, even though he never remembered lyrics.
The camp took place over three days on a Valentine’s weekend. The schedule would be full, leaving no time for flowers or chocolates (neither of which I wanted) or a good dinner out (which I did.) My husband and I like Valentine’s Day, and I felt that I’d cheated us a little by the commitment I’d made to occupy myself without him that weekend.
In an empty middle school classroom, five other grown women and I met our loaner drum kits; bass drum and kick pedal, high-hats, snares, floor tom and rack toms, and our own sets of sticks. After running us through the basics of our grips, keeping time on pancake-sized practice pads, the instructor—a rock drummer with indie cred—put on a recording of Queen’s “We Will Rock You.” We had to follow along in four/four time. The first two beats came from the bass drum. I stepped on the kick pedal, and the drum responded timidly. This irritated me, too, and the child who flailed in anger and sorrow rose up in me. With her foot, I stepped down hard twice, making two deep, satisfying thuds. With her hands, I snapped my right-hand stick onto the rack tom.
Some rhythms are as simple as breathing, but others require perception far beyond the usual. Children dying before their parents is a peculiar rhythm called reverse order of death. The terror and grief of the surviving sibling was rarely addressed when I was a child. As an adult, behind my first drum kit, I created a basic, steady pulse. Hitting the toms, the snare, stepping on the kick pedal, I pounded out a steady groove. I heard no sorrow; just myself, playing in time.
Camp ended with a raucous showcase at a neighborhood coffee house. While bands played, I slipped my arm through Mickey’s, and we drank our beer and bobbed along to the music. When the time came for my makeshift band to take the stage, I kissed my husband and clutched my drumsticks, fighting the urge to careen alone into the night. I’m ridiculous, I thought. I can’t really channel my thumping anger outward, make music with it, or learn to maintain an even pace on which I can rely. But I took the stage with my bandmates, and in the blinding candy-yellow of the spotlight, held my loaner sticks over my head and counted us in. The bass player responded in time, then the singer, then the two guitarists, just as we’d rehearsed. For about two and a half minutes, I hit and I kicked objects built for striking, and as terrible as I’m sure I sounded, I didn’t feel the way I usually did at a moment of impact. I didn’t feel like weeping. I wanted, instead, to shout with glee.
When we finished, the applause was loud and not unexpected—everyone there was friends or family with someone in a band—and from behind the drum kit, I searched the audience for Mickey. He was at the lip of the stage, his hands raised in victory.
Six months have gone by, with me occasionally practicing to videos, my loaner drum sticks beating couch cushions. This year, I turn fifty-five, and I’ve promised myself to keep my hands and heart away from my own skin during my dissonant outbursts of grief. Mickey bought me a birthday present. I’m starting drum lessons. With Pete, who says it’s time for me to keep those drumsticks he loaned me last winter.
•••
JESSICA HANDLER is the author of Braving the Fire: A Guide to Writing About Grief and Loss (St. Martins Press, December 2013.) Her first book, Invisible Sisters: A Memoir (Public Affairs, 2009) was named by the Georgia Center for the Book one of the “Twenty Five Books All Georgians Should Read.” Atlanta Magazine called it the “Best Memoir of 2009.” Her nonfiction has appeared on NPR, in Tin House, Brevity.com, Newsweek, The Washington Post,More Magazine, and elsewhere. Honors include a 2011 and 2012 residency at the Josef and Anni Albers Foundation, a 2010 Emerging Writer Fellowship from The Writers Center, the 2009 Peter Taylor Nonfiction Fellowship for the Kenyon Review Writers’ Workshop, and special mention for a 2008 Pushcart Prize. www.jessicahandler.com.
“I think it’s bad,” my mother tells me, as she lies flat on her back. Her large abdomen hugs the crisp white sheet draping over her. She’s recovering from a cardiac catheterization, a procedure to assess if there are any blockages in her heart.
I put down my book. “Why do you say that?” Even though I know she is probably right. With severely high cholesterol, high blood pressure, and morbid obesity, my mother is living on borrowed time.
“I could just tell by the look in the doctor’s eye,” she says, and then adds, “plus he used a lot of dye.”
“Hmmm,” I muse, “well, hopefully not.”
“Yeah, you’re probably right,”my mother offers.
D for denial should be our family crest.
•••
But my mother’s fears are confirmed; three out of four of her cardiac arteries are between 85% and 99% blocked. They need to transfer her to a larger hospital to perform a procedure where they insert tiny tubes to keep her arteries open.
They need to transfer her now.
An ambulance is called.
The doctor warns us that the procedure can be harmful to the kidneys because of the dye, but she is not a candidate for bypass surgery because of her weight.
The doctor tells us she needs this procedure to save her life.
We don’t ask any questions.
We don’t seek a second opinion.
We just do as we are told.
•••
I ride in the front seat of the ambulance with the EMT driver. The siren sounds and we speed down the interstate, passing curious onlookers who appear safe and secure in their compact cars. The driver and I share the same birthday. She tells me she plans to go to nursing school, too. I nod in agreement and recall my first year in nursing school, when my parents were hospitalized at the same time, my father for emphysema and my mother for a stroke in her right brain stem. I cared for them both single-handedly; my brother lived in New York City. I cooked their meals, arranged physical therapy, organized their medications, and took a leave of absence from work. I was twenty-one-years old.
•••
Now, seven years later, my father has been dead for eight months and my mother’s life hangs in peril. I will myself not to cry, to be strong, to be a nurse, but hot tears trickle down my cheeks instead. A whir of beeps ring from the back of the ambulance breaking my thoughts and terrified, I turn my head, bracing for the worst.
“Is she okay?” My voice is shaky as I yell to the EMT that is sitting in the back with her. “What’s all that noise?”
My mother yells back through the glass, “I’m fine, Melissa!” And the EMT confirms that the beeping is normal.
I exhale.
I listen to my mother tell the EMT about how much I worry and about my father’s recent death. My mother has never met a stranger, and yet I have felt like a stranger to her most of my life.
•••
We arrive at the hospital and I’m standing by the rear of the ambulance, watching as they unload her stretcher. The two EMT workers leave us momentarily to give their report to the receiving nurse.
We are alone.
My mother has to lie perfectly still because of the catheter in her groin, so she motions for me to come closer; she wants to tell me something.
I walk over and hold her hand.
“Did I really need an ambulance?” she asks me fearfully.
“I don’t think so,” I lie. “It’s probably just routine.”
A few minutes later my husband arrives and my mother’s emerald eyes light up.
II.
For as long as I can remember, there was a war raging inside our home, the three of us against my mother. My father, brother, and I formed a united front; we shared a sensitivity that was lost upon her. Every day, during my childhood, we carried out a similar routine seeking refuge from the onslaught of her abuse.
On most mornings, my father would gently wake me up for school, rubbing my back and whispering in my ear, “It’s time to wake up, honey,”and then he would walk into the kitchen to make our breakfast. I would sit sleepy-eyed at the dining room table, eating my cereal as my father smoked his cigarette and wrote in his journal, the news humming softly from our TV in the background.
Then it would be time to get in the car with my mother, who would drive my brother and me to school. “Melissa, get back in the god damn car right now!” she would yell as I sat outside to wait. I hated being alone with her while she smoked one cigarette after another in haste. The smoke was suffocating. Instead, I would move to the rear of the van and inhale the exhaust. I liked the way it smelled and I’d let the toxic fumes fill my lungs breath by breath.
My mother typically drove us half way to school. We would walk the remainder of the way. I would sit in the very back and stare out the window, counting the minutes until we were free. She would drone on about how we always made her late for work in between puffs from her cigarette. One day I finally had enough. I pleaded for her to crack the window open, and I lectured her on the dangers of smoking. “Mom, Miss Smith said that second hand smoke is worse than first hand!”
But she didn’t. “You snotty, little bitch,” she said as she blew a big billow of smoke into the air. She abruptly stopped the car and forced us out, making us walk farther than usual.
“You fucking bitch!” my brother yelled at her as he slammed the door. I ran after him, dodging traffic, fearful to be left behind.
•••
My mother is in the hospital again. My father has been dead for twelve months now; this is her sixth hospitalization since then. I’m sitting in a stiff vinyl chair next to her, watching her chest rise and fall, in a deep sleep. An IV pole stands between us; the clear tubing wraps around her arm and into her hand, delivering medicine through her body in a rhythmic drip.
Drip.
Drip.
Drip.
My trance is interrupted by the sound of the blood pressure cuff deflating. My eyes drift up toward the monitor; 220/110 flashes across the screen in red, and an alarm sounds waking my mother. Startled, she looks over at the monitor, then at me. She smiles. Her plump lips flatten, emphasizing the gap between her two front teeth.
“This friggin’ thing!”She yanks on the cuff, which is tangled in with her gown.
“No wonder my blood pressure is so high!” She scowls as she tries to untangle it, but then stops herself and looks over at me, the elephant in the room. Having watched her abuse and neglect her body for years, we both know a tangled blood pressure cuff is not to blame for her failing heart, but I don’t say anything. I’ve grown tired of challenging my mother, of arguing with her, not out of obligation or out of spite, but out of love. Because deep down, buried beneath messy piles of fear and anger, I want to believe my mother loves me. That she won’t abandon me. That she will guide me when I can’t find my way. Because right now, I am needy and frail, and I feel small and helpless. I am lost. I part my lips to tell her this but then close them. Scared to reveal to her how vulnerable I feel, how raw she makes me, I swallow hard instead, clench my teeth and gaze out the window as the nurse enters the room.
“You look familiar,”the nurse says to me, redirecting my attention as she administers more blood pressure medication through my mother’s IV.
“I’ve been here a few times,”I say, my words sounding colder than I intended.
“Honey, can you get my red lipstick?” My mother changes the subject, and she smiles sheepishly at me as if to say sorry we’re here again, but I know that she is really only sorry that she was caught. Caught in denial and her time is nearly up.
Alarms ring in my heart as loudly as the blood pressure monitor.
I walk over to the closet and fish out the lipstick, hand it to her, and tersely smile back.
This isn’t my first rodeo.
•••
I am ten years old and staring at my mother’s fingers. Her long nail beds, yellowed from years of smoking, are shifting from yellow to white as she grips the steering wheel of our brown, late 1980s model Chevrolet station wagon, as she fights her way through Los Angeles traffic. George, as she named the car, is safely carrying us on this mother-daughter date to our favorite store, Pic ‘N’ Save, so that we can buy my first bikini.
She swings the car into park after cursing, in sign language, the other driver who narrowly stole our space.
“We’re here!”She gives me her sideways grin. Her lips are painted Cover Girl red, her staple.
I am so excited.
Just as we are about to get out of the car, our favorite song, “The Lion Sleeps Tonight,” plays on the radio and we linger in our seats for a moment longer, bobbing our heads to the beat and singing:
In the jungle, the mighty jungle, the lion sleeps tonight.
We croon in unison, building up to the chorus, and our favorite part of the song:
Wimoweh, wimoweh, wimoweh, wimoweh
We are shouting it now, singing with each other in sync, our bodies moving passionately to the music:
Hush, my darling, don’t fear, my darling, the lion sleeps tonight.
I look over at my mother, my lion, and her eyes are closed. Her eyelids are rapidly fluttering; she is fully present. Her hand is resting on my knee; her yellow fingernails are tapping against my skin with the rhythm of the music. I can feel her love; it burns as hot and passionately as her rage.
•••
I am sitting in the airport and, out of the corner of my eye, I notice her. A heavyset woman wearing a white t-shirt and purple slacks walking down the airport terminal with a younger woman, presumably her daughter. The backs of her heavy arms resemble the same shape as my mother’s were. Same shade of alabaster, too. Her gait is also similar, a sort of waddle and shuffle, as if her legs are going to give way any minute from the weight of her giant belly. I watch this stranger for longer than is polite, swallow hard, willing myself to look away.
She does not notice me.
Still I am nearly a puddle of tears, breathless from this small glimpse, this little reminder, of my mother.
And I know.
Regardless of how many books I read, of how many stories I share, of how many years pass; I will always be a motherless daughter.
I will always yearn for what I can never have back. And perhaps for what I never had to begin with: a mother’s unconditional love.
•••
Growing up, I always knew I was adopted. The picture of my birth father was missing, lost in the shuffle between foster homes. But I had pictures of my birth mother: three, to be exact. They were kept in an album labeled, “birth mother and foster home,” tucked away in my nightstand with my journal. I stare at these pictures now trying to remember her, but I don’t. I’ve studied her face, memorizing the gap between her two front teeth and the way her nose has a slight bump at the bridge, but I’m empty. Not a single memory of this woman, whose life is woven and welded into mine through our shared DNA, dwells within my heart.
Her brown, curly hair echoes my own. Our eyes are the same shade of gray blue. She was twenty-one years old when these photos were taken and, in these pictures, she’s sitting behind me, smiling brightly, while I pose for the camera in delight on my second birthday. But if you look closely you can see the clutter hiding behind her. You can see the tension in her smile. And you’ll notice her awkward grip on my waist; a mother who does not know her daughter, strangers to one another, posing for the camera in mockery at the nonexistent relationship between them. At the time of my adoption, two years after this photo was taken, my foster mother made this album for me, and included captions beneath every picture, “Anne and Melissa, second birthday, 1984.” It’s the closest thing I’ve ever had to a baby book.
III.
My mother is recovering from her cardiac stents. She is just getting settled into her room, when suddenly she starts to vomit profusely. The nurse, wide-eyed and frantic, immediately turns to my husband and me and orders us to leave the room. But before we can exit, a swarm of doctors and nurses enter, pushing us out of the way. I’m watching from the corner of the room as the doctor assesses my mother’s groin, the site where her catheter was placed, and yells for the nurse to call the vascular surgeon. I hear the words pseudo aneurysm. My heart races as I steal one quick glance at my mother before we are ushered out of the room. Her green eyes are wide with terror.
My husband and I sit in the waiting room at the end of the hall. Suspended in time, we wait. I get up to use the bathroom then return to our post. Waiting. We are silent as we wait. Minutes stretch into hours until finally the nurse comes out and gives us the okay to go back into my mother’s room. The vomiting caused her to strain, pulling her lower abdomen, tearing the delicate surgery site, which led to internal bleeding. As we enter her room, I notice there are needle caps on the floor, empty vials of medication used to stop the bleeding, bloody gauze, and bandage wrappers littered throughout her bed. It looks like we are at the scene of a crime. My mother jokes about her luck. “If something is going to happen, it will happen to me!” I don’t tell her that the doctor said that it was the weight of her giant belly that caused the tear. I want to protect her. I am also afraid of her reaction. I realize I love and fear my mother in equal measure.
I watch as my husband spoon-feeds my mother her dinner. She was instructed not to move for several more hours, but she has not eaten since dinner the night before. They both laugh and my mother puckers her lips like a baby, yelling, “More, more, more!”
My husband taunts her with the spoon. “Here comes the airplane,” he jokes, and my mother opens her mouth wide. I glower at their lighthearted interaction with each other, my heart heavy with the pain of responsibility.
The next morning my husband returns to work and my mother and I are alone. A hospital volunteer stops by her room, an elderly woman selling magazines and candy.
“Would you like anything, Mrs. Devlin?” the kind old lady asks my mother.
“Sure, I’ll take the Snicker’s bar!” my mother excitedly says. “How much?” She digs through her wallet.
“No, Mom, you will not get a Snicker’s bar!” I scold and then inform the old woman she just had a procedure to clear the blockages in her heart.
“Well, you better listen to your daughter,”the woman offers as she leaves the room.
My mother pouts.
The nurse then enters the room to check her vital signs and my mother retells the story.
“Aww, you wouldn’t let your mom get a candy bar?”she chimes in, taking her side.
I stare at them both, but say nothing, befuddled and incensed by my alienation.
IV.
My mother died alone nine months after her cardiac catheterization. I received the phone call while I was at work. Her heart stopped beating. She was in her living room, sitting in her lazy-boy recliner, the TV blaring, when she took her last breath. I’ll never know her last thoughts, whether or not she gasped for air, or if she felt alone.
Hours after her death, my husband and I arrived at her house. We were greeted by a swarm of people, her friends from church, nosy neighbors, the coroner, the police, and animal control. Children played in the distance; their faraway joy broke my heart. I could see the very top of my mother’s head, her white downy hair peeking over the recliner from her living room window. I stood outside, afraid to go in, as I called my brother. I stared at the ground as we sobbed in unison thousands of miles away from each other, orphaned for the second time in our lives. Having buried my father seventeen months earlier, the formalities of her death felt familiar and foreign all the same.
“Mom, I’m scared,” I cried into the phone,raw and viscous with grief two weeks before she died.
“What are you afraid of?”Her voice sounded tiny and far away.
“Of losing you,” I choked out between breaths.
“Don’t worry, baby,” she tried to reassure me, but I knew the end was near. It was never far behind us.
Hush, my darling,
Don’t fear, my darling,
The lion sleeps tonight.
•••
MELISSA BAUER lives in Atlanta, Georgia with her husband. They are pregnant with their first child and due in November 2014. She works as a registered nurse and has been writing about her journey through grief, loss, and healing since the death of her parents in 2011.
Hours after I became a mother at the age of forty-three in a remote city in China, I got a phone call from my brother Kent. Our father had suffered a cerebral aneurysm and was unlikely to live for more than a few days.
It was December 9, 1994. My father was seventy-six years old, living with his fifth wife in Florida. My mother—his first wife—had died eleven years earlier, and in those terrible ensuing years, my father went crazy and kept getting married to any woman who would say “yes.” He was depressed, desperate, defensive. No matter what his three children advised him, he always had a “next in line,” a woman he knew we’d all love.
The women were younger, destitute, uneducated, and amazed that a man had come along to rescue them. They had no idea that money was one thing, but what went with the money was a man who desired to control their every move. Always headstrong and impulsive, he became worse, so much so that my brothers and I wondered if he suffered from a borderline personality disorder. The judge in his second divorce hearing (the divorce after just a month from his marriage to Bert, a woman I never met who left her job as a waitress at his country club to marry him) suggested my father see a psychiatrist, which my father found absurd. He had no need for psychiatrists; in fact, he considered it a sign of weakness. It was whispered for years that his older sister, Anne, had seen a psychiatrist while she was at Wellesley College, because she was so “high-strung.”
The truth of the matter was that Anne had suffered at the hands of an alcoholic, abusive father who was an embarrassment to his family in the upstate New York town where they had lived. A graduate of Hamilton College in the same class as writer and critic and fellow curmudgeon Alexander Woollcott, of Algonquin Round Table fame, my grandfather was a brilliant, spoiled man who got a law degree at Columbia University and then never bothered to work.
“When was Grandpa’s last case?” I’d ask my father.
“Of Labatt?” was always the response.
We’d laugh and laugh at this private joke.
My grandfather would sit in an overstuffed, low-lying easy chair in the parlor of the Greek Revival home purchased for him and his bride Lucile by his father-in-law and smoke cigars and drink Labatt beer all day long, living off the income from a family bakery business that his wife’s ancestors started in 1896. When my grandfather fell out of bed, drunk, in his late seventies and broke his hip, the end was near. As he took his last breath, my father was at his side, and he told people later that he had said, “Good riddance, you son of a bitch.”
The night before my husband Gregory and I left for China in December 1994, I called my father in Florida to tell him we were on our way. I had seen him a few months earlier at the “celebration” of his fifth anniversary to his fifth wife. She had taken me aside and had said she was leaving him because he was crazy and a womanizer and told anyone who would listen about his new penile pump. I’d told Gregory to call Continental Airlines because we were returning to New York City immediately.
During my final conversation with my father that night before going to China, I tried, as I always had, to get him to focus on me, his youngest child and only daughter.
He talked about a cousin I barely knew and his wife’s friend who had gone to China to adopt a child. He relayed every detail of their trip.
“What about my trip?” I almost screamed into the phone. “What about me?”
I told Gregory that I hoped my father would drop dead.
And he did.
Did he die because I willed it? Did I kill my father?
“There’s nothing you can do,” my brother, a doctor in Richmond, Virginia, where my mother had grown up, told me. “You could never get back in time.”
I knew that I couldn’t leave China without first going through the legal adoption process, which would take place at the U.S. Embassy in Guangzhou in a few days. So I didn’t even think about leaving. A DES daughter, I had endured years of infertility, IVF, a stillbirth, and two ectopic pregnancies; nothing was going to stand in my way of becoming a mother now. I told Gregory that I didn’t want anyone in our group of twelve adoptive families to know about my father. I wanted to keep this separate from the joy of becoming a mother. I would file it away somewhere deep inside my brain and deal with it later.
And so we went on as we had before the phone call from my brother, delighting in our happy, beautiful baby girl. We have photos of the three of us, laughing and clapping our hands, in the hotel restaurant.
When my brother called two days later to say my father had died, never regaining consciousness, I cried, for the first time. And then we prepared for our long trip back to America with our baby girl, Wei Xin-Fei, renamed Lili.
I flew to Florida for the funeral, which took place on a golf course. Golf was his only real passion, so this was fitting. The master of ceremonies, if you will, was Patty Berg, the winner of a record fifteen women’s major golf championships and a founder of the Ladies Professional Golf Association. My father had become friends with the five-foot-two powerhouse Patty Berg because she was the pro at his golf club. After one of his divorces, he had nowhere to live, so he moved in with Patty. I had a hunch that she was a lesbian, although she never came out, which is the only explanation I had for why he didn’t marry her. I’m sure he asked, as he always did. But she was not his type; she was smart, successful, independent, tough. He liked the thirty-year-olds he met at shopping malls and bought televisions and VCRs for, the ones who had been mistreated by men. He was there to save them. His mission in life.
Patty Berg told funny stories about my father, like the time he got a hole in one and then tried to duck out of having to buy drinks for everyone. A notorious cheapskate, we had many family stories about how he’d put rotgut vodka in Smirnoff bottles. There was never a brand name in his cupboards; he was the king of store brands. Heinz Ketchup or Crest Toothpaste? Forget it.
He was the ultimate do-it-yourselfer, and not a very good one. He cut his own grass and hair, did the family laundry, whites and colors all together, and mended our clothes. My father prided himself on his sewing ability. When I’d visit him in Florida, I could see him eyeing my jacket to see if there were loose buttons.
“Take that jacket off, and I’ll sew that button back on right now,” he’d urge me. Or rather, order me.
“It’s okay, Dad,” I’d respond.
But he was a dog with a bone, and in no time, he’d whisk out his olive drab sewing kit, which he received during World War II, where he had served in North Africa soon after graduating from Yale. He had everything he needed in that frayed kit: small Wiss bandage scissors; a tape measure; some hooks and eyes; a thimble; sewing needles; a safety pin or two; and a couple spools of Coats & Clark’s Boilfast fifteen-cent thread. He had two colors of thread, forest green and blue-grey. Oblivious to matters of fashion, he paid no attention to matching his thread to the item in need of his attention.
When my father’s widow/almost ex-wife asked me to select a few items from his desk drawer in their condo in Florida, I came across the sewing kit.
FROM
AMERICAN RED CROSS
BEAVER CO. CHAPTER
NEW BRIGHTON, PENNA.
“I’d like to have this,” I told her.
“Oh, that Rex,” she laughed. “He did love to sew. And he was terrible at it.”
That Rex. Rexford Walker Titus Jr. My father. A lunatic, in so many ways. He drove me crazy, and then he died, before meeting his granddaughter. I rarely discuss him with her.
But now, days after she has turned twenty, I think I’ll show her the World War II sewing kit. And maybe I’ll tell her about Patty Berg and the funeral on a golf course and the grandfather she never knew.
I may also tell her a terrible truth of my own life: hours after she was brought to our hotel room, her father and I called his parents and my brother Kent to tell them we were parents. This was before Skype and Instagram, so there were no photos.
I planned to call my father in a day or two, but I didn’t, and it was too late. So he never knew of our joy. Why, oh why, was I so damn stubborn, such a child, at the age of forty-three? Why did I still feel the need to punish him, a confused, frightened man who lost his bearings when his wife died?
I return often to the final paragraph of a 1954 story by Harold Brodkey, called “State of Grace,” that I first read when I was an English teacher in Philadelphia in 1974. It left me speechless then, and it still does, forty years later. The author looks back at his arrogant, guarded thirteen-year-old self, filled with guilt and self-blame at his lack of tenderness toward a younger boy:
“I’m thinking of all the years that might have been—if I’d only known then what I know now. The waste, the God-awful waste. Really, that’s all there is to this story. The boy I was, the child Edward was. That, and the terrible desire to suddenly turn and run shouting back through the corridors of time, screaming at the boy I was, searching him out and pounding on his chest: Love him, you damn fool, love him.”
•••
ELIZABETH TITUS has been a journalist (Gannett), an English teacher, an advertising account executive (Doyle Dane Bernbach), and a communications director (fifteen years at American Express). She has a BA in English (Skidmore), an MA in English (University of Pennsylvania), and an MBA (Wharton). She left the corporate world in 2002 and has not looked back, dedicating her time to freelance writing, traveling to places she always longed to see (Africa, Russia, Turkey), taking courses at the Sarah Lawrence Writing Institute, and volunteering for two nonprofits devoted to educating Afghan women, the Afghan Women’s Writing Project (awwproject.org) and The School of Leadership Afghanistan (sola-afghanistan.org). She is the mother of Lili, age twenty, and the legal guardian of Sabira, an Afghan woman, currently at a boarding school in New England and hoping to attend Middlebury College in 2014.
This is my sister Erin: As a child, she befriended the kids who were the outcasts so that they’d have at least one friend. In high school, we heard of a house fire; I donated some cast-off clothing, but Erin gathered up things that were still in rotation in her wardrobe. As an adult, she kept her door unlocked in case any of her friends dropped by and needed her. In the past couple of years, she has played host to a friend whose marriage needed some space, another friend going through detox, and another who was turned away from the psych ward although she was clearly in need some of mental health services. She stayed at Erin’s home, manic and wild, until her parents came to pick her up the next day.
Erin and I were born twenty-three months apart, summer babies, the children of school teachers. I’m older—I’m the oldest of the four of us sisters—but we each affected who the other became. As an adult, I’m expansive and generous and open to vulnerability; Erin taught me that. When I’m around her, though, I revert back to the same counter-balance that I’ve been all our lives: protective, suspicious of people who might take advantage of her giving nature, willing to fight her battles. I had a reputation, once, of someone not to fuck with, someone slightly crazy, aloof and unpredictable. I used to like that: it kept my sisters safe.
•••
Krissy, the third of us, called me. “Jeff died,” she said.
She’d called Erin earlier. Erin was gulping against her tears, more upset than Krissy had ever heard her. Erin’s husband, Jeff, had stopped breathing. Jill, our youngest sister, was on her way to Erin’s house where paramedics were working on him. In the next hour, there was confusion on Krissy’s and my part whether Jeff was actually dead. Maybe Erin meant that he died … but then someone had revived him!
She called Mom at work. “I think Jeff died,” she said.
“Krissy,” Mom said. “Did he die or not?”
“I don’t know.”
We were hopeful and inadvertently passed along that small hope to Mom, too, but no. They tried to save him. They didn’t.
(This is the part where I’m not going to write about Jeff, my handsome brother-in-law whom I’ve known since I was fourteen, the guy with whom I’ve laughed and bickered and grieved. This is the part where I’m going to keep up my denial that we’ve lost him. This is the part where my denial allows me to stay strong.)
The next day, Krissy drove up from Charlotte and picked me up in Charlottesville before continuing on. We stopped at a gas station for her to fuel up the car and for me to buy beer because I would need something to numb me. We’d been slap-happy on the drive up, too many hours in the car, and I stepped away to smoke a cigarette. The November sky in late afternoon was brilliant, cirrus clouds lit up pinky-orange by the setting sun. I don’t know why the sky is always important after a death, but it is. I can remember every sky after a death. When I came back to the car, Krissy was sobbing.
•••
We know how to get shit done.
Krissy and I got there too late to help make arrangements at the funeral home with Erin and their son Brit, but Mom and Andrew, Erin’s and Jeff’s friend, went; our Aunt Kathy met them up there. I was charged with writing Jeff’s obituary with heavy input from Erin and Brit. Jill took on making a playlist of songs to be played at the service. Krissy created a slide show that showed Jeff through the years, a slide show to which my eyes would wander the entire time at the funeral home.
Secretly, I had another mission: to determine who was a person there to surround Erin and Brit with support and love and who was a just a grief glommer.
The muscles of suspicion came back easily. After all, Erin was at the most vulnerable I’d ever seen her, lounging on the couch where Jeff slept, her big hazel eyes wet, veering wildly between intense grief and moments of okay. It was a testament to how open and welcoming Erin and Jeff were that so many people felt so close to them. Now, I eyed each one carefully.
In the aftermath of this tragedy—and this was a tragedy, Jeff only forty-two—our girl gang found the gamut. People are kind; people are misguided; people are completely inappropriate.
The first group was obvious. We found support in Erin and Jeff’s friends and our extended family, as well as in our own friends: food was brought, pictures were enlarged and framed, funeral deposits were made, alcohol was delivered.
I looked at the second group with some distance: the grief groupies. “I’m there for you,” although neither Erin for Jeff knew them, only knew of them. “If you need anything, call me—I’m not far away.” Yes, I thought at the time: Erin is going to call on near strangers to talk or maybe ask for help with the mortgage payment. Later, I could be more generous. I could see that these people were looking for a way to be important, looking for a way to make a difference. They were clumsy and maybe motivated by a hope that this was their chance to make a big impact on somebody’s world, but their impulses were benevolent. (Later still, some of these people would seem vaguely creepy to me, giving not only Erin but the rest of us too much personal attention.)
The last group, though, I still have nothing but disdain for. The grief looky-loos. They friend us on Facebook in the day or two Jeff’s death after not contacting us for twenty-some years without so much as an “I’m sorry for your loss,” and I have no idea why. You want to see what a family looks like when someone dies young? You want to see the face of raw mourning? You want to lick the salt of our tears? You want to see what Thanksgiving’s like this year? You want to hold my shuddering body as the baby-faced Army men fold a flag and present it to my sister? It’s not on Facebook. It’s here. Look close. You can call it schadenfreude, but it can happen to you.
•••
There was another category, though, and I’ll call her Liz. Liz was the friend who Erin and Jeff took in when she was turned away from the psychiatric ward. She claims to be bi-polar, but I suspect she’s schizophrenic; she abuses her medication so her condition isn’t controlled. I have loads of empathy for her in normal circumstances. She absolutely cannot help that she’s been dealt this illness, as debilitating as invasive cancer. But these were not normal circumstances.
Erin gets a text from Liz. She’s on her way up, she writes. She’s going to stay with Erin—permanently, if Erin would like! Erin, obviously, can’t take care of anyone at this point. Krissy offers to text back from Erin’s phone, to take one more thing off Erin’s plate, and we confer on the wording. Erin has a full house, Krissy texts, but we’re looking forward to seeing her at the funeral. At the last minute, Krissy asks me if she can change “Hi Liz, this is Krissy” to “Hi Liz, this is Jenny,” and I agree because this is what this is what the oldest is, the spokesperson and executive branch of The Family, charged with approving and enforcing the laws.
This is the place where I come home as a grieving sister-in-law and leave as the most hated alumna of my high school.
We’re plagued with other people posing the question: what happened? They come in droves, over the phone, on Facebook, in person. That evening, Jill and I drive the five minutes back to the home she shares with Mom and her daughter, and Jill tells me that everyone—all the sisters—are getting worn down. “What the fuck are they thinking?” she asks. “It’s not like we owe them anything.”
That night, I post on Facebook, “I know this is a hard time for everyone, but it’s especially hard for Jeff’s family. Please, please stop asking us what happened. What we know is that Jeff took a nap and died in his sleep. It’s maddening for us not to have more answers, too.” I tag my sisters, and, like that, the questions stop.
I tell my friend Tracy about this later, and she tells me that she thinks that there’s some part of people that looks for reassurance that death can’t happen to them. I agree, I agree, I agree, but can’t these people talk amongst themselves?
•••
The next day, I’m doing the day shift at Erin’s house. Our mom, Uncle Jimmy, and Grandma came by, but Erin fell asleep. Eventually, everyone leaves but Erin, Brit, and me, and, in the quiet, dim room, I watch her sleep while I read (not really, but it gives my eyes something to do) in the armchair.
The front door flies open. It seems unnaturally loud in the hush of the house. “Hello!”
A woman in sunglasses and a long, embroidered coat sweeps in the foyer. I get up from the armchair, and when she takes off her sunglasses, I see that it’s Liz.
“Liz!” I whisper. “So good to see you! Erin’s sleeping.”
“Oh, okay,” she says.
Brit comes in the room from upstairs, and she moves purposefully toward him, throws her arms around him, and cries, clinging to him, as if seeking comfort. Brit and I make eye contact.
No.
She releases Brit, asks me a few questions. She plays with the dogs for a little while. Serendipitously, another friend of Erin’s comes by. In the same whisper, I explain that Erin is sleeping, something that doesn’t come easily to my sister now. Liz asks me if she can hang out for a while. Brit interjects that Erin just fell asleep. “I’ll tell her that you came by,” I say. “I’m sure she’ll appreciate it. We’ll see you on Saturday.”
The two leave together.
But Liz comes back later that day, not on the day of Jeff’s funeral. She surprises us, showing up during the changing of the guard, when I’m going back to Mom’s, and Krissy and Jill are on their way over to spend the night with Erin.
In that time, Liz goes to the basement where Erin sits when she needs time to herself. I hear later that Erin talks to Liz, telling her how everyone has been so supportive: her family, Frank, Andrew… Liz starts arguing that she’s never heard of Andrew.
Really, she’s arguing for her own primacy in Erin’s life, which she cannot see simply doesn’t exist, although it’s no one’s fault.
Then Liz starts in on Erin’s decision to have an open casket. Erin tells her that she’s not going to argue about it, but Liz continues her rant. It finally falls on Brit—a man, but a young man, one who just lost his father—to stop her. “My aunts aren’t even here,” he says. “You need to leave.”
•••
We drive to the funeral home mostly in silence. I’m in the backseat with Jill and my niece. At every turn, I slide on the leather seat against their hips. The last time I spent any time squished in the backseat with family, we were going from our grandfather’s viewing to get something to eat. Then, Jeff drove us in his big truck. Now, my niece’s dad is driving.
I stare out the window at this part of Virginia to which I haven’t been since I was a teenager. There’s the strip mall where my best friend served frozen yogurt. There’s where The Black-Eyed Pea used to be, back when it was a restaurant and not a band. “Here,” Jill says. “Mike, turn here.”
“Jill,” he says quietly. “This used to be my playground.”
A grand old house with a broad porch has been converted to the funeral home. We help carry in what will be displayed: Jeff’s bass guitar, photos of him, trophies. The home is quiet and the wide wooden boards of the floor creak as we enter.
The funeral director’s name is Chad. Chad! Like a guy you know who maybe was a lifeguard in his youth and likes to party. But this Chad is soft-spoken and radiates kindness. He leads Erin and Brit into the chapel, where they spend some time together, alone, the three of them, the two of them.
When the private family time is over, people start arriving. In droves. Chad tells us later that since Jeff’s death, the phone at the funeral home had been ringing near-constantly with people trying to make sure they had the right time and place and day.
•••
The Niesslein sisters switch into full-on support mode.
Our parents’ divorce was a messy one, and although it’s been twenty-five years, some learned instinct—a prayer to no one: please keep it pleasant—kicks in for me when the two sides of the families come together—until now, just for graduations, marriages, and the births of grandchildren.
They’ve almost always kept it civil and sometimes downright pleasant, and they rise to the occasion again. I stand with my Dixie cup of water, wishing it were something stronger (a joke I’ll make a million times over the course of the day) and listen to chitchat between the two sides. Our cousin and his wife are wrangling their six-month-old son, a blue-eyed beauty whose heart belongs to anyone with a necklace to fiddle with. Our grandmother from the other side of the family notices him. “Bring me the baby,” she says from a wingback chair. She’s a little Godfather-like in her delivery, but this newest Niesslein brings both sides together in admiration of the little guy.
Family: check.
For the most part, Erin and Brit stay in the chapel, now crowded with people filling the pews, waiting in line to see Jeff’s body, wishing Erin and Brit their best. I look at Erin across the room, and I can’t even imagine how she’s still standing. I suppose that it’s a combination of denial and medication and the default mode of who she is: warm and loving.
As for the rest of us, we’re running around the place like the A.V. Club, asking Chad and his colleagues to turn off the music, turn up the mic, resume the music as people—Brit, Jeff’s friends, his musical buddies—give their tributes. People are spilling out of the rooms onto the porch, the driveway, the waiting room of the home’s office. Jeff and I graduated together, so his funeral is, in addition to being one of the most wrenching things we’ve ever gone through, an impromptu class reunion.
It’s crowded enough that we can quietly shun people who we know make Erin or Brit uncomfortable or who Jeff didn’t like. There is Liz, touching inside the coffin. There are a few other people who, when they look as if they might approach us, we busy ourselves, mostly by checking on one another. Occasionally, I sit down. I’m doing this when Jeff’s old bass teacher plays a lovely song as a tribute, and as I lean into the furniture, forgetting, I think, You know who’d like this? Jeff.
Like my other sisters, I usher Erin through the crowd to have a cigarette, take a break, abandon her smiling façade for a moment. I notice a crowd of our high school alumni gathered out front, talking and laughing. I can’t hold it against them—I’d done the same throughout the day. But looking at them, I realize that this is their final goodbye; they’d file Jeff away in their memories soon, a guy that they’d known and liked who died too soon. We were different. We—the people who loved and supported Erin and Brit—would be the Sherpas across their long chasm of grief, descending into it with them and climbing up, step by steep step.
•••
After the funeral, we head back to Mom’s and Jill’s house. Our extended family is already there, quietly providing a spread of food and drink. Erin and Brit had invited close friends and family to join us in the celebration of Jeff’s life, and soon the house is crowded.
I let down my guard and crack open a beer. I take off my boots and put on slippers. I hug—long, lingering hugs, inhaling nosefuls of scent—my husband and our son for whom I was so homesick the night before. I survey the group. This is the love and support that Erin and Brit deserve right now.
I use the bathroom off of Mom’s room, and when I come out, Grandma and our cousin Jordy are searching for Gram’s purse that she ferreted away somewhere deep in Mom’s closet. Jordy’s using his cell phone as a flashlight, and I’m clicking through the hangars when Jill bursts in.
“Liz is here,” she says.
I pause. Am I the person who’s going to bounce a deeply sick woman from the house? Yes, it turns out. Yes, I am.
In the living room, Liz is standing in bare feet, looking at the baby. “Liz,” I say. “Can I talk to you outside for a minute?”
Although the day had been warm, it’s freezing outside now, and I lead her to a place down the sidewalk, away from the people lingering with their cigarettes.
“I heard you weren’t very supportive of Erin last night,” I say. “I think you need to leave.”
“I respect that,” she says. She stares into my eyes for a long time without blinking. I’ve been drinking, but even I can see that she’s trying to intimidate me; we’re down to our most animal selves here. I stare back.
“I can’t believe after such a good friend I’ve been to Erin and Brit and Jeff that you’re asking me to leave—”
“I appreciate that, Liz.” No, I don’t—they’ve been good, amazing friends to her, but it hasn’t been, couldn’t be, completely reciprocal. “But that’s not my job here. My role is to make sure that they’re surrounded with love and support.”
She stares at me for another long time, and I don’t break her gaze. “Let’s go,” I say.
I head toward the front door as Grandma’s leaving. I make way for her and her walker. Liz, not seeing, tries to push past. I put my hand on her shoulder. “You need to wait. Our grandma’s leaving.” My tone is sharper than I intend, but maybe that comes with the territory of being a bouncer.
Eventually she locates the guy she came with, and they leave. I crack open another beer. The five of us—four sisters and our mom—find ourselves in the foyer sometime later, hugging each other in a circle, like a coven. Our cousin Mike snaps a picture, and that’s how I like to remember that night, each of us supported by the collective strength.
•••
It’s three weeks after Jeff’s death. I’ve been calling Erin every other day, Brit once in a while. Today, I’d gotten Erin’s voice mail, and she calls me back. She’s crying. “I just miss him so much,” she says. “It’s only been three weeks, and I have a lifetime of this.”
“Just an hour at a time, baby,” I say.
For the first time in my life, it hits me: I really can’t protect her. I can write this stupid, fucking, whiny essay in which I paint myself as some kind of hero, but it’s a distraction from what’s really going on. Jeff’s gone, and as much as I want to snatch the pain away from Erin and Brit, I can’t. I can steer away people who aren’t helpful, but I can’t alleviate this ache, this loss, one tiny bit. I don’t know what to do with this impotence.
When we were little, I’d ride my bike with my sisters, Erin in the banana seat in front of me, Krissy on the handlebars with her feet in the basket. There was a family down the street who kept a pack of dogs, half-crazy mutts, and when I saw the pack coming, I’d tell my sisters to get off the bike and get behind me. I’d walk the bike to our house, its shiny pink aluminum the shield between us and the Big, Terrible Thing.
I was wrong to say that we’re Sherpas. All of us will have to descend into that chasm of grief, alone, together, and climb out, alone, together. When the Big, Terrible Thing happens, it doesn’t matter that you’re the big sister. The shield is flimsy, and you are, despite your best hopes, simply a familiar body to cling to. You have to start believing that that is enough.
•••
JENNIFER NIESSLEIN is the founder and editor of Full Grown People. Her website is jenniferniesslein.com.
I was forty, and single, and pregnant, and jubilant. I blossomed during a perfect pregnancy and then proceeded to give birth to a beautiful baby boy I named Ryan Peter Schoenthaler, eight pounds twelve ounces and twenty-one gorgeous inches long. He died nine days later in my arms, still and cool.
I buried that boy on a sunny hillside in a tiny casket designed to look like a bassinet, and by the time I stumbled out of the cemetery, I was a dead woman walking. Some days I couldn’t keep my eyes open; other days I could barely speak. I dreamed in adjectives: impossible, unbearable, unimaginable; I woke up with verbs: pulverized, imploding, eviscerated.
Two years later, I gave birth to a boy named Kenzie James. I got through the pregnancy and birth through denial, plain and simple, with one permanent pricetag: nine months of total amnesia. Of that period of pregnant pause, I remember OJ Simpson and I remember grinding my teeth, and that is really all.
Three miscarriages and three years later, when my last son came along—Cooper Craig Schoenthaler—I was wholly awake and fully attentive and I remember everything. Of the six pregnancies, I am left with one birth story.
Cooper was delivered by Cesarean section. An average C-section takes six or seven minutes from incision to delivery; Kenzie’s took an endless half-an-hour; Cooper, eleven minutes. Eleven minutes to a lifetime.
I lay there while they opened me up again, floating along the arc-line that had gradually and irrevocably led me to this scene—lying flat on my back in a yellow room with bright lights. I was a woman physician under the care of women who started out just like me, women who struggled over books and tests and money and hostile men in positions of power for years at a time and who now put their bodies and souls on the line.
I remember my obstetrician Sharon coming to my hospital room at midnight to attend Ryan’s brain-dead baptism. I picture her holding my hand in the NICU that night and then again and again over the next five years. I think of all the phone calls: I would sob and she would let me make any appointment any time as I worked through the surviving of survivorship.
I think of all the tables I have laid on and all the doctors I have seen—a long line, a stately procession—giving me good news and bad news and no news at all. I think of Ryan’s delivery and his death. I think of how I lifted his body straight up above me, offering him to the sky. I think of Sharon two years later holding Kenzie aloft, in triumph, a giddy elevation of child-spirit, a peak moment, a crystal. I think of the dim light in Ryan’s NICU room where his soul sailed away, and the bright lights in Kenzie’s delivery room when his soul sailed in.
I think of the night light that Kenzie uses—how at three he is already such a singular little person who wants to look at books alone at night, how his soul is full of light and always has been. I feel the presence of both Kenzie and Ryan very distinctly within me, as well as a whole line of women who have given birth before me—my grandmothers and my friends, my mom and all the bereaved women in books and on buses.
I listen to the heartbeat monitors and think of Ryan’s heartbeat ceasing and Kenzie’s frantic heartbeat when he’s feverish and the roaring in my ears each time I miscarried and I can’t help but compare them to the steady beat-beat-beat that is my own heart’s rhythm in this room at this moment.
It’s a long eleven minutes.
Then I hear Sharon start to croon. In seemingly an instant, she again holds one of my sons aloft in the light. The overhead lamps create an aura, a halo, an embrace and I experience blindness reversed as the light heightens every pore and every limb and Cooper is outlined in beauty, screaming shrieking bloody beauty. He is alive, he is aquiver, he is a soul.
They bring him to me wrapped up and warm. I get my first good hard look at him: he is red-faced and dumbstruck, and I am the same.
I reach for him. No one says a word. The room is quiet; it feels like an altar. There’s no heart monitor machines now, no barking loudspeakers, just the murmuring of Sharon and her partner, and the nurses counting sponges. I kiss Coop over and over—his perfect cheeks, perfect skin, perfect neck. He turns to me when I speak.
I lay there with this miracle in my arms, flooded with all that can happen over the course of half a decade. I remember the long period after Ryan’s death when a pain-free interval seemed impossible, when anguish never ended and never waxed or waned.
But I realize, lying there, that somehow, somewhere, something carried me through. It is too strong to call it “hope”: there was no hoping back then. It’s too strong to say it was anchored in me—it was not. But it must have floated, in and out, with the moon, or with the seasons, or maybe with each breath.
Because something helped me hear the muffled words that sometimes bounced off the sheer rock cliffs of my pain. I began to hear the voices in the cemeteries I visited—voices of mothers who murmured that if I could just keep breathing long enough the tunneled darkness might begin to lift. I began to see the anguish of my cancer patients in terms of cells defying death. I began to connect myself to a humanity bound up with suffering—plague victims, war dead, road kill, religious martyrs, and most of all a long line of women who had keened over children in caskets.
Something had taken hold of me. It wasn’t optimism or confidence or faith in an equitable universe—that was gone and would never come back.
It was much fainter: a tiny turning, a whispered murmur, a miniature red berry lying deep and dormant. But the berry dropped a seed and the seedling took. A tiny bud appeared and on it there must have been a drop of dew, and that was where I let that little thing that must have been hope float. I never touched it, I never named it, I really never even knew it was there. I just let it float. I let my hope float. I let my hope float on an impossibly tiny bud and now I had another son, I had two more sons.
They move us to the recovery room where it is dimly lit and quiet. Cooper nurses. I am pain-free and at a level of peace that is hard to describe to this world. I curl up on the gurney in the darkened recovery room, all dreamy sated senses.
Eventually the nurse and I begin to chat. She remembers Ryan well. “Every time I pass Room 428 I think of all the flowers you left behind,” she tells me. Then we coo about Cooper, how beautiful he is and already such a good nurser and so alert and connected and smart.
She tells me then about her own difficulties with conceiving, her doubts and how frightened she has become. I can so completely relate to this young woman at the beginnings of yet another long trail. She says to me, “We’ve tried so hard to have a baby, but I’m afraid to keep trying. How did you keep your hope alive?”
I start to tell her, but I hesitate. I’m suddenly tired beyond imagining, my eyes and limbs feel weak and I am nearly asleep. I murmur, “Just let it float.” She says, “Hope Floats? Isn’t that a movie?” and I giggle into the pillow.
Lying there laughing, I feel them like a flash flood, the raw and precious lives that led us here: the lives where pain has a beginning but anguish has an end, where seasons start and berries fall, where there are voices that can pierce the darkness and where cells that split can mean life in one year and death in the next and where there are webs that connect us with our ancestors and that in the darkest winter there are buds that can act as cradles and that hope may not spring eternal but that it can absolutely float.
•••
ROBIN SCHOENTHALER is a writer/mom/physician (the order varies by the day) who lives outside Boston with her sons Kenzie and Cooper. They are now seventeen and fourteen, and Ryan, had he lived, would be a freshman in college. Her website is www.DrRobin.org.
On this day thirty-nine years ago, my mother died.
Last night I went down to the kitchen and lit a candle for her, as I’ve done for many years. Standing before the flame, I remembered her face and certain moments when her playful, girlish spirit glowed most brightly. More ambitiously, I tried to open myself to these memories, to love her and grieve for her again—to cut through the hardened skin and reach the tender place that time has buried.
As always, I fell short.
It’s a Jewish tradition to light a yahrzeit candle (the word means “time of year” in Yiddish) the evening before the anniversary of a loved one’s death. I’ve been doing this for a long time—for my mother, for my sister’s first husband, who died when he was thirty-six, and for my father. You’re supposed to light the candle at sunset, but I wait longer, until my children are asleep and my wife is watching television upstairs. Bringing the dead back to life requires solitude, silence, and concentration.
The memory I reconstructed last night was the time my mother took me skiing at Sterling Forest. I was fourteen and itching to ski a second time, after a trip organized by a local Jewish center the winter before. My mother never managed to pass her driver’s test, so we took a bus from the Port Authority, after an hour-long bus and subway trip from Queens. (This took place during the two-year period of my parents’ divorce, before she gave up her dream of a happier life and married my father again.) She didn’t dare put on skis herself; instead, she spent the day in the heated lodge. Each time I checked in, she smiled a full-to-bursting smile. She may have been glad to see her son enjoying himself—or perhaps some handsome stranger had flirted with her. She had always craved adventure and romance, and rarely got any.
Looking back, her generosity seems almost superhuman. Getting there without a car had taken hours—and then she had to spend the day inside a soggy snack bar. Yet she never complained, or even sighed. (Of course, it’s possible that I’m misremembering.)
Not even this memory, though, could break open the locked place. The trouble is, I’ve used it before. My fund of memories is limited; I’ve gone back to the same ones too many times.
The candle burned on the stove all night, and it’s still burning today. Each time I pass through the kitchen, the pale flame reminds me to pause and think of her. Each sighting is another chance to pay her the tribute she deserves.
Again and again, I fail.
•••
My parents never belonged to a synagogue. I grew up without Hebrew school, seders, or religious belief. I find it odd therefore, and a bit absurd, to catch myself lighting yahrzeit candles.
There’s a simple explanation: when I was young, I saw my mother do this for her mother. After she died, it seemed a comforting way to honor her. For me, the custom has nothing to do with faith. Rather, it’s a way of repaying through remembrance the love I owe to those I’ve lost.
But why is it so hard? It shouldn’t be. I’m not trying to contact the spirit world, or hold a soul in my hand, or see eternity.
The answer is scar tissue. My mother died when I was nineteen and away at college. She’d had a hysterectomy the year before, and it had gone badly; she swelled and never felt right again. Still, her sudden death, alone at home while my father worked, stunned and overwhelmed us all. Those first few days, I worked to keep hold of myself, to get through the hours without breaking down in tears. Then a little granule of thought or memory would set loose an overpowering wave of grief. I hated the feeling—like a seizure, or a psychotic episode—and fought it with all my will. Holding it together: the words describe perfectly the effort to keep from falling apart.
I resisted grief just as tenaciously as I resisted other difficult emotions. My parents’ raging fights had terrified me as a child; I closed the door and shut out their voices to keep the horror from touching me.
Those waves of pain after my mother’s death battered and breached my fortifications. Each one left me more determined not to give in to the next.
Since then, I’ve built more barricades. That’s the real reason why I can’t reach the place I seek as I stare at the yahrzeit flame: the armor is too thick. I’m no more capable of voluntarily returning to that pain than I am of strangling myself with my own hands. The older I get, the less of the mourner’s feeling remains. I linger at the flame, but eventually have to accept that I’m not getting any closer. Regretfully, I leave the candle behind and go upstairs.
It’s not that I’m no longer capable of grief, only that I can’t recover the sensation in these old wounds—not by concentrated effort, anyway.
When memories come unsolicited, though, I can still surprise myself. A few days before my father’s yahrzeit this year, a speaking engagement took me to Florida, where he had lived for the last twenty-four years of his life. As my wife and son and I stepped out of the jetway, the familiar blend of heat, air-conditioning, and humidity carried me back to the many times when I’d visited and found him waiting right here at the gate, searching for my face.The emotion I’ve been seeking at the candle nearly drowned me. For my wife and son, who’d known my father only in old age, this was an ordinary arrival, free of emotion. For me, it came with a crushing reminder that my father, whose bent leg I used to slide down, will never come to meet me again.
•••
For some, religious ritual opens the door to the spirit. Not for me. Reluctant to say words I don’t believe, I avoid ceremonies and prayers of all kinds.
That doesn’t mean I deny the spiritual altogether. There’s more to us than earning a living, running errands, and watching TV. I don’t want to lapse into sentimental hooey, but I do believe that each of us has a soul—a stew of hopes and sorrows, ideals and memories, rarely perceived except in solitude.
Once, in Central Park, I found myself alone under the trees with rain falling quietly on the leaves around me and on the umbrella above my head. That unexpected peace filled me with bliss. Though inexperienced in such matters, I recognized the state as a gentle form of what others might call religious ecstasy.
Yahrzeit candles serve as another entryway to this mysterious place. If anything can inspire meditation, it’s a small, slender flame. (Think of Georges de La Tour’s paintings, especially “The Penitent Magdalen.”) Even a whisper will upset the fragile fire; a forceful breath will put it out. As the flame consumes wax and wick, you can’t help thinking of the span of a life.
By gazing at the candle, I remove myself from the tasks that keep me busy. Although my goal is more emotional than spiritual, the effort resembles a monk’s prayer: an attempt to contact something intangible. I find it ironic, even a bit embarrassing, that I—the most irreligious person I know—should end up in so devout a pose.
If my goal is unguarded love and sorrow, then I’ve never reached it. I can admit to myself now that I no longer expect to. Even so, there’s satisfaction in simply pausing before the candle and remembering. Though sometimes the memories that come back are exactly the wrong kind—my mother sobbing because the washing machine had flooded the kitchen, my father’s vicious words when they fought, my brother-in-law shouting, “Prick!” at another driver who’d cursed him—recalling these moments brings my lost family back into the world. That’s no small achievement, after so many years.
Rather than struggle to feel what I can’t, I intend to celebrate future yahrzeits by enjoying the memories: Danny, my brother-in-law, making waves with an air mattress at Aunt Dotty’s above-ground pool until the water splashed over the side, sending cousin Gregory and me to the highest heights of boyish happiness. And my father patiently driving me wherever I asked him to on those Saturday mornings when they were divorced—to Kennedy Airport to watch planes take off, and the new McDonald’s for lunch, and one Shell station after another, so I could collect a complete set of commemorative coins of the presidents. I see now why he indulged that ridiculous desire: like my mother taking me skiing by bus, he knew their battles had left me wounded, and would have done almost anything to repair the damage.
Those pointless coins have been lost for decades. The memory is still with me, though, rich enough to yield new understanding even now.
•••
MICHAEL LASER writes novels for adults and adolescents. His most recent book is Hidden Away, about a teenager who disappears on the morning of the SAT. For more about him and his work, visit michaellaser.com.
I have become, at fifty-three, a full-grown person. Two years ago, I stepped into the role of midwife to my mother’s death. I chose it. She was with me when I began. I would be with her when she ended.
Lung cancer had colonized her brain, her spine, her right hip and shoulder. Where did this begin? My father smoked, a lot. My mother smoked, very little. My parents and little sister lived fewer than ten miles from the Three Mile Island Nuclear Generating Station on the morning that the reactor experienced a meltdown in March, 1979; I was away at college. Mom refinished furniture for a hobby, breathed the fumes, handled the toxins. After my father was gone from her life, her late-in-life boyfriend smoked. Where did this begin? Everywhere and nowhere.
“So this is what happens when you have six kinds of cancer,” Mom said the first time she fell. She said it again the first time she couldn’t stand unaided, and the day she threw up the crème brûlêe.
“It’s just three kinds of cancer,” I said, bringing her ginger tea to the table. We laughed, a little. We are dark-humored, and fluent in the language of terminal illness.
My mother had three daughters, of whom I am first and last. Susie has been dead for forty-four years, Sarah for twenty-one. Susie developed leukemia when she was six. I was eight. She lived less than two years. Our little sister Sarah lived with a rare blood disorder and died as a young woman. Mom and I spoke of them often. Often we spoke of them without words.
I told my sisters’ names to Y., our favorite nurse’s aide. “In case she’s looking for them,” I said. For dying people, past and present run together like chalk drawings in the rain. “She was calling for Susie yesterday,” Y. told me. I wondered aloud if Mom was troubled or frightened. “Not at all,” Y. said, relieved to know who my mother had been trying to find. “She was looking out the door, like she was calling in a child from playing.”
My heart broke.
•••
Some mornings I woke in my mother’s bed. Others I woke with my husband in my own bed, ninety-four miles from hers. There was a moment every morning when I didn’t know where I was.
Mom’s pain was usually a two or three. On the Wong-Baker FACES™ pain scale chart, that’s somewhere between a smiley-face with barely knit brows and a smiley-face that appears to have something serious on its mind. The zero quantity of pain-free is represented by an untroubled smiley face with a touch of crazy-eyes. Neither Mom nor I reached a ten, the greatest level of pain. Ten is a crumpled, desperate face shedding drops that could be sweat or tears. Or blood. Her oncologist told us we were lucky.
My pain would hover at five, if pain scales measured the heart. I dreamed that it was me on the blue plastic draw sheet the nurses used to lift her. At the grocery store, I got lost. Which aisle has the cranberry juice? Does Mom have English muffins? This grocery store is in my city, not hers. I’m stocking my kitchen one week, hers another. I don’t want English muffins. I don’t want juice. I have lost fourteen pounds in the last two months. My always-slender mother wasted away. She weighed so little that I could lift her like a toddler. From the bed to the portable toilet, to the wheelchair, to the piano, to the bed.
•••
When I was a little girl, I drew pictures of birds and of girls. I couldn’t draw faces, so I put bird heads on girl bodies and made bird girls. I concentrated while I drew, singing a two-note song to myself, sustaining what I’ve come to understand as a meditative state. What am I focused on now, watching my mother’s face and seeing my own in hers? The bird-girls of my childhood drawings never flew. They went to work and ate and played and smiled their giddy smiles with beaks. They had expressive eyes.
Before my mother flew, before she closed her eyes and dreamed morphine dreams, our eyes locked over the commotion; so much to say, and nothing to say. We spoke without opening our mouths. We spoke without words.
•••
Mom died in her bed at home. She was seventy-eight. Hers was what hospice will tell me is a good death. A great death, the social worker will call it.
Several weeks earlier, to a nurse, a visiting friend, a relative—I no longer knew, everyone seemed interchangeable but my mother and me—I spoke for Mom on her behalf, even though she was right there in the living room with us, in a wing chair reading about Elizabeth Bishop and Robert Lowell. I spoke as if she weren’t there. “I don’t think Mom will want that,” I’d said, about a sandwich or a painkiller or someone’s insistence that she go outdoors in the wheelchair she loathed. Mom looked up from her reading.
“I can speak for myself.” She was smiling, but I’d hurt her feelings.
Drawing her out, I toyed with grammar, a subject that entertained us both.
“I’ve made you object and subject,” I said, “so what’s the verb?”
“Am,” my mother told me. “The verb is ‘I am.’”
•••
On what would be the last night of her life, I fell asleep just after midnight, curled up beside her. When the nurse woke me, I was surprised by my calm. But that night, we were doing nothing but waiting, my mother and I. She had been on morphine for two days, bitter pills the nurse slipped under her tongue. Mom winced when she tasted them. She hadn’t spoken for two days, and then only a whisper: “I love you,” to Y., who had been part of her life for nearly a year, who climbed into the bed with her that morning to hold her and weep. When I stood beside the bed and asked Mom to rest, to take it easy, she mouthed, “I will.” I told her she’s my favorite mother. She smiled. I’ve told her that for years. Two nurses rolled her like a log and changed the draw sheet. We had a hard night. The oxygen she never used, never needed, became urgent for the first time the night before when Mom suddenly couldn’t catch her breath. I rolled the blue O2 machine from where she’d secreted it behind a nightstand. The evening assistant helped her with the cannula. “Do you want me to call hospice?” I asked Mom. She nodded, taking in the canned air.
At one in the morning, I sat cross-legged on her bed, holding her cool hand. I thought about how death is the exact opposite of birth. An obvious cycle and a thought not original to me, but I’ve never had a child and never witnessed a human birth. There was no sweat, no blood, no sound but Mom’s subtle breathing, arrhythmic and gentle. Her bedroom smelled of lavender from the bushy plant on the patio and from her hand cream. I held one of her lavender sachets to her nose. She grimaced, then relaxed. “Tell her what you’re holding so she doesn’t startle,” the night nurse told me. I did, then held the sachet to Mom’s face again. This time, she was calm.
The night nurse had woken me, saying barely audibly, “It’s time.” Time for what, I wondered, thick with sleep, then saw where I was, that my mother’s hand was entwined with mine. I was neither anxious nor weeping, not begging Mom to try and live one more day. There’s a falsehood in that statement: I was anxious. I lived with a low frequency of anxious for two years. I didn’t want her to ever die, to leave me. There was not one thing that I could do to change our course.
I asked the nurse to tell my husband, dozing in the den. She vanished, returned with him, tucked a chair behind him. We focused only on Mom. Her breathing slowed; her apnea grew longer and longer. She stopped. I looked up, gestured to the nurse. I remembered her name: M., from the compassionate care team, the end-of-life, round-the-clock team. She held her stethoscope to my mother’s chest, my mother skinny and sleeping in her white waffle-knit long sleeved t-shirt. M. shook her head, told me she’s still with us. Mom took another short breath, shallow, a surprise to me, and then she was empty. As empty as an overturned glass. M. flicked her penlight on and leaned into Mom, lifting an eyelid. She shone the light, closed Mom’s eye, and said, “She’s gone.”
We took from Mom’s pinky finger the silver and jade ring that my grandfather made, and I put it on my own.
•••
Full grown comes and goes with me. I don’t feel grown, and then I do. There is no choice. I wear the ring, and I feel my mother holding my hand. I hear her voice, flying just outside the scrim of my world. “I am,” she says. You are.
•••
JESSICA HANDLER is the author of the forthcoming Braving the Fire: A Guide to Writing About Grief (St. Martins Press, December 2013.) Her first book, Invisible Sisters: A Memoir (Public Affairs, 2009) is one of the “Twenty Five Books All Georgians Should Read.” Her nonfiction has appeared on NPR, in Tin House, Drunken Boat, Brevity, Newsweek, The Washington Post, and More Magazine. Honors include residencies at the Josef and Anni Albers Foundation, a 2010 Emerging Writer Fellowship from The Writers Center, the 2009 Peter Taylor Nonfiction Fellowship, and special mention for a 2008 Pushcart Prize.
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