Spectrum

By Fiona Tinwei Lam

RED (life)

My partner was brewing a pungent, murky brown concoction on the stove. The label on the box beside the stove listed burdock root, slippery elm bark, sheep sorrel, and turkey rhubarb root, but it gave me no clue as to the purpose of the ingredients.

“What’s it for?” I asked, sniffing the pot.

Ted mumbled something unintelligible.

“Is it a laxative?” I asked.

“Not exactly.”

“For digestive problems?”

He paused. “Nope.”

Puzzled, I tried again. As a custom cabinet-maker, he had been working long hours and weekends but seemed energetic and healthy. “Is it for your anemia?” Several months before, he had been diagnosed with a severe iron deficiency, but he’d been taking a supplement.

“Kind of.”

I made a few more failed guesses. Finally, he said flatly and quietly, “It’s for cancer.”

I stared at him. “Why on earth do you think you have cancer?”

He kept stirring the pot. “I’ve been passing blood.”

When I urged him emphatically to see the doctor for more tests, he shrugged. He carefully poured the steaming brew through a sieve into a couple of large jars, not spilling a single drop. “I guess I should.”

•••

Several weeks later, we sat with the gastroenterologist in a small examining room, looking at a color print-out of the images taken during an internal scan of Ted’s intestines. One image revealed subtle polyps that looked hardly more sinister than crimson crayon scrawls. Another image showed the slight bulge of a small polyp that resembled a small fleshy boil or pimple. But then there was the final image: it looked like a blob of gummy red gelatin encasing curled-up maggots. It filled a third of the intestinal tunnel and resembled a fetal mouse or fetal frog. I repressed an instinctive shudder.

“It’s cancer,” the doctor said without drama. “I took a biopsy, but I’m fairly certain.”

So this was what cancer looked like from the inside. Ted’s father had died over two decades earlier of complications following stomach cancer surgery. A decade earlier, Ted`s eldest sister had died of colorectal cancer at the age of fifty-seven. Years of gruelling chemotherapy, radiation and experimental therapies had failed to stop its spread. We were informed that people with a first-degree relative with colorectal cancer are at a higher risk of developing it. Being the most commonly diagnosed type of cancer after prostate cancer for men, it is the second leading cause of death from cancer overall, although if detected early, it is over ninety percent curable.

The doctor matter-of-factly went through the process that we’d be going through: staging to determine how far the cancer had spread, an ultrasound and CT scan, analysis of the biopsy results, a referral to a surgeon. He drew a diagram of the kind of bowel resection surgery that Ted could expect to undergo—it looked deceptively simple, a cross between plumbing repair and alterations at a tailor’s.

Strangely, neither Ted nor I was alarmed. Perhaps we’d used up our storehouse of apprehension during the weeks leading up to the colonoscopy From this moment on, he would go through the necessary tests and procedures with all the hoops and steps laid out for him. It was as if we were both buckled into the seat of a medical amusement park ride called “the oncological flow chart.” A positive result on one test might lead to a diversion down a more complex chain of procedures; a negative result might lead to a positive destination reached in a shorter time. None of the flow charts in the cancer brochures led to the word “death.” But it existed, unwritten, just over the edge.

•••

We arrived for Ted’s surgery at Vancouver’s historic St. Paul’s hospital on the first day of August. As we dutifully followed the painted red line on the floor through the body of the older buildings into the newer sections, we passed commemorative plaques about the nuns who had fundraised on horseback at mining and logging camps to raise funds to found the hospital at a time when the current downtown site was located on the outskirts of wilderness.

Little did we know how familiar we would become with that brick edifice with its threading red line. Advised initially that he might expect a stay of five days, Ted would remain there for over four weeks. I would be taking the bus there daily, sometimes twice daily, for the remainder of the summer.

VIOLET (spirit)

We’d prepared for weeks before the surgery, going in for Ted’s appointments with the surgeon and for scans, as well as to the pre-admission clinic to review hospital checklists, instructions, and test results which I gathered in a purple file folder on the kitchen counter near the phone. That file became both compass and hub through the summer and fall.

On the morning of the operation, we were the first to arrive at the day surgery department at what seemed like any typical waiting room—institutional chairs arranged against the pastel walls, a coffee table with outdated magazines. After he checked in at the reception desk, Ted changed into a hospital gown and we sat together until he was called. It didn’t seem to be a place of sufficient gravitas, of momentous, radical change, where your guts would be sliced open, dismantled, rearranged or removed—or where you could die.

Because the surgery was supposed to last three hours, I took the bus home while Ted got his abdomen shaved and epidural and intravenous lines inserted. Too restless, I returned downtown. There were booths and kiosks set up along Davie Street as part of a block party in advance of the Pride Parade the next day. At Bute and Davie I walked by the celebrated rainbow crosswalk, Canada’s first permanent rainbow-painted crosswalk added to the West End in 2013 to celebrate the thirty-fifth anniversary of the local Pride Parade. I went into a dollar store to buy a small rainbow flag to mark the festivities. Inspired by Judy Garland’s song, “Over the Rainbow,” the flag had been designed for the 1978 Gay Freedom Day Parade in San Francisco to represent the diversity of the LGBTQ movement, with special symbolic significance assigned to each colour.

Back at the hospital, I headed upstairs to Ward 10B to look for Ted. He was a bit groggy but conscious and smiling, and looked surprisingly normal except for the various tubes emerging from underneath his sheets that were connected to a catheter, an IV, and a patient-controlled hydromorphone dispensing machine known as a PCA that he could press whenever he was in pain. I pinned the rainbow flag next to the “Nothing by Mouth” sign that was turned face down on the bulletin board behind his hospital bed, wondering why each of the six beds in the room had bulletin boards with those signs and no artwork or photos.

As there didn’t seem to be any kind of bulging from his abdomen, I asked Ted if the surgeon had given him an ostomy. He wasn’t sure and hadn’t had a chance to ask. The whole idea of having your intestine protrude out from your body to expel feces into an external bag had made us both queasy and anxious, despite our having watched the obligatory DVD at the pre-admission clinic that showed gorgeous athletic men and women blithely unaffected by their ostomies.

With his permission, I gingerly lifted the sheets and then his hospital gown, bracing myself for the worst. We both peered down at his belly. There was a narrow tube leading from a dressing a few inches beneath his rib cage to a small disc-like Hemovac drain to remove the build-up of excess blood and fluids after surgery. On different parts of his belly were five neat sets of black staples along puckered, deep red incisions, with the longest row near the pubic area. Over the weeks ahead, the redness would soon fade to purple, and then eventually light brown, until the scars from the incisions were barely perceptible.

I put his gown and the sheets and blankets back in place. I felt like celebrating and considered heading out to watch the parade the next day to wave our little Pride flag. Ted had made it through surgery successfully. He was in good spirits. The cancerous tumor had been removed, with no need for an ostomy. Maybe this whole ordeal wasn’t so terrible after all?

BLUE (serenity)

Ted found it difficult to sleep on the ward. The blue PCA machine dispensing the hydromorphone and IV fluids ticked and clucked day and night without a break except when the IV or the medication needed to be refreshed. We pretended there were miniature robotic chickens trapped inside it, even tried to imitate the sounds. He had to take it with him to the bathroom, the IV pole draped with tubes and with electrical cords that had to be pulled out each time. But the PCA alleviated the discomfort, at least during those first few days. I fretted about the possibility of addiction, but he waved my concerns away and kept clicking the button to bliss.

When he’d been first diagnosed with colorectal cancer, I had wondered how I’d feel about the hospitalization, bed pans, diapers, catheters, the physical changes to his body, the possible ostomy. Although we had lived together and become more interdependent over the past four years, he knew that I still had some doubts about our relationship. He was concerned that his care would become a burden that I would resent.

“You don’t have to come every day,” he told me.

I looked at him in disbelief. “Of course I do!”

And I did. The day after the operation, I ventured out to drift among the crowds in the intense August heat to get a glimpse of the parade. The noise and hoopla were fun, but ultimately it felt jarring to be surrounded by the teeming exuberance and staged goodwill. I rushed back to the hospital where it was quiet and cool and where I really wanted to be—with Ted.

Most of the time, after arranging plants and flowers and cards on the sill and getting him fresh ice chips, I’d gaze out the window by his bed. I’d look down at the shifting rhythm of traffic on Burrard Street and out at the glass towers that reflected both each other and a faceted sky. After drawing the curtains between us and the other patients so we could at least have the illusion of privacy, I would sometimes sit facing him on the bed, my back against the footboard, my legs alongside his, so we could hold or rub each other’s feet, which felt more intimate than holding hands.

Sometimes after the visitors had gone and if my twelve-year-old son was staying at his father’s, I’d remain to watch dusk fall across the city. I didn’t have to be social or chase down Ted’s frustratingly elusive leprechaun-like surgeon and his wandering medical team. The fluorescent lights would be turned off and everything would slowly become bathed in blue. I’d watch a DVD with him on the old portable player I’d brought, the light from the screen flickering across his face.

Other days seemed very long. I wouldn’t realize it until I returned home. Saturated from the hospital, I would want to collapse in bed, but I’d face a backlog of texts, voicemail, and email messages. My work, household chores, and tasks accumulated, undone. I had just enough energy to deal with Ted at the hospital and my son at home and not much left for anything else. But it seemed impossible for it to be any other way. Whether I was examining Ted’s stitches and dressings, helping out the nurses by changing his hospital gown or diapers, giving him sponge baths, massaging his feet, taking him for walks, or just sitting with him, it was important for me to be there. Our lives were entwined. Until then, I hadn’t been aware of how much. What bound us together wasn’t a yoke, leash or chain—it was a root.

ORANGE (healing)

Very soon after his surgery, Ted started receiving clear fluids. The little four ounce chilled plastic juice containers started to pile up: mostly orange, but grape and apple too. The inevitable hospital jello came also— yellow, orange, and red, laden with sugar, artificial flavours and colours, and probably made from gelatin extracted from the bones of factory farmed animals. Dishwater-like broths of questionable origin arrived as well. He downed them all willingly.

As his incisions seemed to be healing well, the type and level of foods swiftly advanced from meal to meal as the dieticians tried to speed his progress and ready his digestive system for his possible discharge from hospital in a few days’ time. He started receiving cream soups—broccoli, carrot, mushroom. When he started getting little cups of orange sherbet and vanilla ice cream, Ted’s eyes lit up as he devoured each one. His abdomen became increasingly bloated, however. We started joking that he was growing twins. Then rice with green beans and fish arrived, followed by a chicken sandwich, puddings. The stack of unopened juices grew taller. His belly ballooned out, painfully distended. The traffic jam inside his digestive tract became untenable. Intense, continuous nausea overcame him. He stopped smiling, his gaze turned downward and inward. The food was left untouched.

GREEN (nature)

Ted rejected the insertion of a nasogastric tube for two long days. But soon, it was impossible for him to think or sleep.

“Could I get more medication for the nausea?” he pleaded with the long-suffering nurse on the ward that day.

“You’re already on the highest dose,” she said shaking her head, disapprovingly. Her tone of voice shifted into persuasive mode. “Why not try the NG tube? You’ll feel better.”

Ted was fighting his body’s natural urge to reject the food. A scan showed that a gas pocket near his duodenum was causing the blockage. He finally agreed. It took five painstaking, arduous attempts by the nurses to feed the NG tubing down his nose into his stomach while he gagged and vomited on the floor. One attempt stopped him from being able to speak. He had to yank out the tube in order communicate to them that they’d threaded it in the wrong direction, toward his trachea instead of his esophagus.

When I returned later, he was sitting with his eyes downcast with concentration and discomfort. He seemed demoralized and exhausted. Green fluid was being suctioned out through his left nostril via a long tube attached to his nose that snaked into a large plastic canister attached to a wall unit. The canister was already half full. Canister after canister was filled and emptied that day. Ted’s nausea started to subside, but talking was kept to a minimum. I fended off friends from visiting.

“I’ll never look at a green smoothie the same way again,” I told him.

Over the course of the weeks ahead, it seemed almost everyone else in the gastrointestinal ward would be “producing” the exact same green fluid irrespective of what they were ingesting, as if the ward were some bizarre factory. The sound of vomiting was common. The cleaners were regularly called in to mop the floor of spilled bodily fluids of every type.

A number of patients came and went, part of the shifting social microcosm of the ward. We joked about pitching a reality TV show called Ward 10B. There was an elderly Danish man with dementia who was scheduled for a reverse ileostomy but kept pulling out his IV and trying to flee. Beside him was an outdoorsy young man who’d been airlifted to the hospital as a result of tearing his spleen after a dive gone wrong. After a few days, he was replaced by a wiry, grizzled fellow with keen, bright eyes, who swore and complained vociferously about the food. “What’s this shit?” The patient who had a bed next to Ted’s appeared to be a new immigrant. His chador-clad wife had her hands full trying to shush two young, precocious children. He was soon replaced by another patient whom we nicknamed “The Prince.” He conversed frequently and loudly on his cell phone in Farsi while his mother fussed over him. “More ice!” he commanded the nurses repeatedly.

The insertion of the NG tube did not end Ted’s problems. Just after his surgeon left for summer vacation, Ted’s temperature began to rise dangerously. His distended belly became tender and painful. The fluid in his Hemovac tube became pus-like and fetid, as if something were rotting inside him. A CT scan showed that there were air bubbles leaking from the re-sectioned area—infection had set in. He was put on an intensive course of antibiotics via IV and his vital signs were monitored every hour.

A peculiar foggy terror filled my throat and chest. My every movement seemed sluggish as if I were trudging through swampland, but certain thoughts flitted around in obsessive loops. I questioned the doctors, sent detailed emails and texts to his family members. I peppered the night nurses with questions when I’d get home late at night. Some would brush me off; a few would update me. If he deteriorated further, he would have to be admitted to the Acute Care ward for continual monitoring and more drastic medical interventions. A second operation could be risky, and if it occurred, even more of his colon might need to be removed with the likelihood of an ostomy, probably a permanent one. He might get another infection. Recovery would be longer, slower and more complicated.

Because his system had rejected most of the food and drink they’d given him, and because of the need for the re-sectioned bowel to heal properly, the doctor prescribed daily liquid nutrients, called total parenteral nutrition (TPN). A nurse told us that each bag cost $1000 to make fresh daily and had to be specially transported to St. Paul’s from another hospital laboratory. We named it the Crisco milkshake but it seemed more akin to breast milk. Chock-full of lipids, sugars, vitamins, trace minerals, and amino acids, it was a creamy white substance that was administered by an extremely narrow catheter threaded into a central vein in his chest. A nurse told me that the leftover TPN discarded at the end of each day supposedly worked well as plant fertilizer. (I took some home for the garden—our apple tree had a bumper crop the next year.) The TPN would sustain Ted for the next three weeks while he ingested nothing but ice chips. The orderlies with the food trays would stay away: the sign on the bulletin board was now turned face-up.

•••

The lounge in the ward had a small bookshelf with a few outdated magazines, several hospital foundation publications, and a number of dog-eared paperbacks. I noticed the cover of a single National Geographic magazine in the stack. The pristine copy was dated 1968 and its feature article described the plans for the first lunar landing. During those weeks in hospital, I sometimes felt like we’d landed on an artificial planet, a desolate sterile landscape with little vegetation, shifting inhabitants, its own unique language, hierarchies, protocols, and undeviating routines.

The whole ward seemed utterly divorced from nature: its windows wouldn’t open; the sliding glass door to the balcony off the lounge was locked; the concrete balcony itself was dirty and uninviting; there was no fresh air and little greenery other than a few limp, discarded bouquets and dehydrated plants left behind by discharged patients. I placed a hydrangea plant in the corner of Ted’s room so that he would awaken to their large blue clustered heads and rich green leaves every morning. As soon as they entered his room, the nurses and visitors would see something alive and beautiful and thriving.

YELLOW (sunlight)

Ted was supposed to have regular, short walks to maintain his circulation, increase his strength, and speed his healing. At first, it took immense effort just to get to the bathroom. He’d prepare himself with a shot of hydromorphone from the PCA, put on his special rubber-soled hospital socks, put on another hospital robe to cover his back, disconnect the NG tube during the days it was in place, clip the Hemovac to his gown, unplug the two electrical cords from the wall, drape the cords on the pole, pull himself up, and then try to walk step by shaky step without losing his balance. Getting back to bed meant going through the whole routine in reverse.

Eventually, he was able to get past the doors of the ward to reach the service elevators, next to windows that looked out onto the expanse of English Bay. He would pause there for several minutes, gripping a railing for support, before enduring the arduous fifty meter journey back to his bed.

“I was in better shape before the cancer operation,” he noted.

Right up to the day before the operation, he had been working full-time. He’d been full of vigor, tanned from a recent trek around ancient Haida villages up north, and ready to hop on his Yamaha motorcycle at any opportunity. Now he couldn‘t walk across a room without effort.

I thought of all those expressions—“gutsy,” “gut instincts,” “gut reaction,” “gut-wrenching,” “gutted,” “it takes guts,” “spill one’s guts,” “bust a gut,” and “no guts”—based on the word “guts” derived from the Old English word guttas for bowels or entrails. The adjective “visceral” comes from the Latin word viscera for inner organs also. It suddenly all made sense: the guts are located in our core, the elemental source of instinct, courage, determination, stamina, will, and strong emotion. The operation had hit Ted literally “right in the gut,” the stronghold of his vitality.

But as the days passed, his stamina gradually increased. We could extend his usual walk from the service elevators and back to include the ward down the hall. Finally, he was ready to try to take one of the notoriously slow elevators down to the fourth floor cafeteria and patio. As we waited, I could see how taxing it was for him just to stand.

The elevator finally arrived. Ted winced at every bump and jolt as we descended. The long imposed fast had eroded his body’s insulation. We made our way toward the almost vacant cafeteria. He steadily exited the open glass doors and was outside for the first time since his admission over three weeks before. As the late afternoon sunlight touched his skin, tears sprung to his eyes.

“It must be the medication,” he said.

My sister pulled up a plastic chair and helped him sit down. The plants in the concrete planters around us clearly needed watering. There were food wrappers and a few empty cups lying around, and some of the tables needed a good wipe. But it didn’t matter. We sat quietly while he closed his eyes and drank in the sunshine and the fresh air with an intense wordless gratitude.

“This is amazing,” he said at last, opening his eyes and smiling.

We talked about his progress to date. Ted had lost most of his muscle mass: his already slim 5’11 frame had been whittled down to 145 pounds. He would soon start a very cautious clear fluid diet. We stayed outside for about twenty minutes before Ted asked to return. This was the longest walk he’d taken since his admission and it had sapped his diminished reserves.

We would visit the patio again only once or twice more before his discharge; it was easier for him to take short unaccompanied walks on his floor. During the end of his stay, the monitoring of his vital signs grew less frequent, tubes were removed one by one, fewer and different medications were administered. He was even able to take his first shower. He was being released in more ways than one.

•••

Discharge day. Ted had filled out the necessary papers and questionnaires, been briefed on his diet and pain medication. He also was entirely tube-free at last. As he put on the jeans and shirt he’d arrived in thirty days before (much looser now), I removed my son’s school watercolours from the wall and the cards from the window sill and bulletin board, erased my daily list of questions for the doctors from the whiteboard, packed up the magazines, DVDs, and the rainbow flag. The room soon looked as blank and anonymous as it had been before our arrival.

“Good luck,” said the nurse who had dexterously changed Ted’s dressings, given him injections, and adjusted the IV over the course of the month, all with an artificial arm and hand.

We gave him the still healthy blue hydrangea for the staff room, and waved at the head nurse who was engrossed with paperwork. There was no one else to say goodbye to. Almost all the patients that we’d met in the beginning of Ted’s stay had been discharged earlier. Everyone was going about their business as if this were an unremarkable day.

As we walked toward the elevators, I wondered how many patients had stayed in that ward. How many had lived and how many had died as a result of their operations? Every bodily fluid imaginable had touched those floors. Every kind of person had lain in its beds, and every kind of emotion had been felt—boredom, irritation, anger, fear, despair, agony, exhaustion, relief, even joy—the full spectrum of human emotion and humanity.

The threat of a possible cancer recurrence would linger on the horizon for the foreseeable future, but it didn’t matter. Exactly one year and one week after his surgery, we would finally get married at a private family ceremony in our backyard. As my brother drove us out of the hospital parkade onto Burrard Street into the late summer sunlight, Ted teared up again. “It’s the medication,” he said. “Makes you emotional.”

•••

FIONA TINWEI LAM has authored two poetry books, Intimate Distances and Enter the Chrysanthemum, and a children’s book, The Rainbow Rocket, about a child witnessing his grandparent’s struggle with Alzheimer’s disease. Her prose and poetry appear in over thirty anthologies. Her past work has been shortlisted for the Event creative nonfiction prize and City of Vancouver Book Award, and she recently won The New Quarterly’s Nick Blatchford poetry prize. Her video poems have screened at festivals internationally. She edited The Bright Well: Contemporary Canadian Poetry about Facing Cancer and co-edited the creative nonfiction anthology Double Lives: Writing and Motherhood. She is the co-editor of a forthcoming anthology of creative nonfiction and poetry about marriage, Love Me True: Writers on the Ups and Downs, Ins and Outs of Marriage. Born in Scotland, she immigrated to Canada at a young age with her family. She practiced law briefly before becoming a writer and teacher at Simon Fraser University. www.fionalam.net

Testimonial

church — By Gina Easley www.GinaEasley.com

By Allison Green

David arrived at our house in an oversized raincoat. He’d brought a magazine for assistance; it was somewhere in the folds of that big coat. My partner Karen handed him a jelly jar, and we agreed that when he was finished he would put a candle, unlit, in the front window. Karen and I left him to his magazine and walked down the block. The day was pleasant for a Halloween in Seattle. We kicked at dry leaves heaped along the sidewalk and laughed at the strangeness of the situation, how we were waiting for David but trying not to imagine what he was doing, how none of the residents of the neighborhood could have guessed what we were waiting for.

After about fifteen minutes, the candle was in the window. As we went up the walk, I sang that Rocky Horror Picture Show song about a light in the darkness. Karen and I smiled giddily at each other, then stopped smiling so as not to spook David. I tried to act normal as we entered, not avoiding his eyes but not staring either. He was already wearing his coat. From its depths he pulled out the jar, wrapped in a washcloth to keep it warm. We thanked him. He raised his eyebrows and went out the door.

•••

Karen and I had been together twelve years when I finally agreed to have a child. We had been moving around the country for jobs and graduate school since we met in 1985, and finally we had settled back in Seattle, my hometown, with solid jobs, mine at a community college, hers at the public health department. We bought a house. I could think of no more reasons to wait.

I’d never felt an urge to have children, but Karen always had. Still, when I agreed to try, I also agreed to carry the child because of Karen’s health complications. If anything, pregnancy and birth sounded cool to me; dealing with a toddler didn’t. I put one big condition on my agreement: I wanted a known sperm donor, not an anonymous one. He didn’t have to be actively involved in the child’s life, but I wanted to be able to show the child a picture and say, “This is your father.” I was squeamish about putting a stranger’s semen in my body, not for fear of disease—the latest testing procedures seemed reliable—but because I needed to know who I was communing with on a cellular level. I needed to know what he looked like and how he talked, what he cared about and how he treated people.

After spreading the word to our friends, Karen and I found our donor in a writer I’m calling David. He had gone to graduate school with a good friend of mine, Wendy, and wasn’t attached romantically. He was interested in helping us because neither he nor his brother had had children, and they probably never would. Although he didn’t want to parent himself, he liked the idea of his family’s genes continuing on. The situation was complicated by the fact that he was living in California now, not Seattle, but we were willing to pay for his flights up, and he liked the idea of free visits to a city he loved.

David was funny and self-deprecating, which suggested a sweet vulnerability underneath. I liked him immediately and grew to feel a brotherly fondness for him. Although we didn’t have a relationship that allowed for this, I often felt the urge to lay my head on his shoulder and nestle into him.

After discussing expectations, drawing up contracts with lawyers, having medical evaluations, and charting my ovulations for a number of months, we were ready in late-1997 for the first insemination.

David left that Halloween afternoon, and Karen and I sighed, glad to be alone. In the bedroom, I shimmied out of my pants and lay down, feet up on the wall. My doctor had given us a catheter syringe and tubing, and Karen put the syringe in the jar to suck up the semen. We both squinted at the jelly jar. It had been a long time since either of us had seen that liquid. It was oddly translucent, not milky, and there didn’t seem to be much. Karen wrinkled her nose, but I was fascinated. So much intrigue surrounding such a modest substance.

Karen was having trouble getting the semen into the syringe. “Maybe a smaller jar would be better,” she said.

Finally, she got what she could into the syringe, inserted it into the tubing, and pushed the plunger. I felt nothing, not even an ooze. And now I was supposed to wait, feet on the wall, for twenty minutes. Karen sat on the edge of the bed, keeping me company. It was exciting; it was nice. I felt engaged in something purposeful and good.

The next morning I was a wreck.

•••

At the same time that Karen and I were trying to have a baby, I was casting around for a new writing topic and was drawn to the story of my great-great aunt, Ruby Jane Hall Thompson, a woman long dead. She was very large, which had earned her a nickname derived from the town in Idaho where she lived: “Lewiston,” as in “Here comes Lewiston.” It wasn’t a nickname she knew she had; my father told me his uncle used to call her that.

Ruby Jane was a Christian Science practitioner. At first I didn’t know what that meant, but I learned that a practitioner was a kind of faith healer. Christian Scientists, as I understand it, don’t believe that matter exists; our true reality is the spiritual. Believing in God means recognizing the false nature of the material world, including sickness and disease. Practitioners help Christian Scientists pray through their self-induced periods of sickness and back into right alignment with God.

What drew me to Ruby Jane was the idea of being related to a larger-than-life mystic, a western Idaho healer. I imagined Lewiston in the early twentieth century as a desolate, wind-swept town, and I imagined Ruby Jane there exerting her power in one of the few but classic ways available to women: as a kind of witch. My novel would be gothic, magical realist. I began to research Christian Science.

Mary Baker Eddy, it turned out, is the only American woman to have founded an influential religion. Born in 1821, she had health problems throughout her life, and in her ongoing quest for relief, she finally hit on the principles that would inform her famous book, Science and Health with Key to the Scriptures. Eddy must have had tremendous determination, skill, and charisma to self-publish this book, teach a growing legion of followers its principles, and start the church in 1879. By 1894 she had erected the church’s first building. By 1908, when she was eighty-seven, she had started the Christian Science Monitor. Thousands of people still attend her church. On Wednesday nights, they gather to tell stories of miraculous healing.

That the church was started by a woman, and that it is peculiarly American, with its focus on optimism and boot-strapping, made it all the more fascinating. My great-great aunt Ruby Jane was born while Eddy was still alive, and the founding mother must have been a thrilling model of what a woman could be. Indeed, the church is quite female-centric; the Lord’s Prayer begins with “Our Father-Mother.” I imagined Ruby Jane as an ancestress of power and wisdom. I would go in search of her.

•••

When the inseminations began, I had been on Prozac for a year. After a decade of attempting to manage my many bouts of anxiety with meditation, hypnosis, exercise, and therapy, I had given in: Give me the drug. It worked, to some extent. Going on Prozac felt like finally taking an aspirin after a life-long headache; suddenly I could see more clearly and function more smoothly. As Karen and I began talking about having a baby, I researched the influence of Prozac on fetuses. Although there was a small risk of damage, many researchers said that the risk of depression was equally bad if not worse, so it was hard to say whether a woman should stop taking the drug. I decided not. Still, sometimes it didn’t seem to be helping.

The morning after insemination, I felt as if I’d mainlined fear and shame. What if the donor is infertile? What if he has HIV after all? What if I get pregnant and it feels like an alien sucking at my insides? Why do Karen and I have to share such an intimate act with a stranger? Why do I have to hold such a humiliating position against the wall? What is this body that used to be mine?

I did everything I knew to reduce the anxiety: writing down my fears, giving myself pep talks, going to yoga, working out. As usual, the tension would take days to dissipate.

Nine days later, I got my period. Maybe we mistimed my ovulation or maybe my cycle was weirdly short that month, but we were using an ovulation predictor kit and monitoring my cervical fluid, although it was often hard to read. One of the challenges of the process was predicting ovulation with enough accuracy to get David on a flight in time to be at our house during the fertility window. He hated to fly, and as the months went by and I didn’t get pregnant, his fear ballooned. He came off the plane each time sweaty and weak, which couldn’t have helped his sperm count.

In December, I made a chart of the logistics: David was arriving on Thursday. Whether the ovulation kit was positive or not, we would have to inseminate. If the kit was positive on Friday, then pregnancy was still possible. If it wasn’t yet positive Saturday, then we had wasted the month. What were we doing? Had my demand that we have a known donor doomed us to fail? Did I really want a child?

•••

One of the terms from Christian Science that captivated me was “malicious animal magnetism.” The idea of “animal magnetism” was around in the nineteenth century, and Eddy added the word “malicious” to the phrase. It’s a way of describing evil, and in Eddy’s theology, evil always comes in the form of bad thoughts, that is, thoughts that contradict or undermine God. Therefore, people’s thoughts can be corrupted by malicious animal magnetism. In her memoir about growing up Christian Scientist, Blue Windows, Barbara Wilson calls malicious animal magnetism the “repressed madness” inevitably created by a church that focuses so relentlessly on the positive. She says Eddy was paranoid about competing healers and used the phrase to refer to their attacks on her.

The idea of evil as something tempting and animalistic somehow makes it less frightening to me; it’s not deliberate but subconscious, a feeling that sweeps one up and makes one do things. It’s the evil wrought by a scared cat, lashing and hissing from a corner. When the fear passes, the cat retracts its claws.

My anxieties seemed like a form of malicious animal magnetism. And like the Eddy cure—which was thinking right thoughts—various authors, doctors, and therapists had suggested that I write down my thoughts when I felt anxious and analyze them. So I did: It was obvious that I was afraid of having a child. But I was also afraid of not having one. And I was afraid that my anxieties about having or not having a child would hound me throughout the entire insemination process. In other words, I was anxious about anxiety. This was ridiculous. Surely it was normal for a woman embarking on a pregnancy to be afraid. I needed to accept the uncertainty of the situation and relax, let the cat retract its claws. Of course, relaxation was easier said than done. Maybe what I needed was a practitioner.

•••

The following June, I skipped insemination to go to Boston on a Christian Science pilgrimage. I saw the Eddy monument in Mount Auburn Cemetery. I listened to a tour guide at the Mother Church talk about why she wore glasses; she wasn’t spiritually advanced enough yet not to use them. I walked through the Mapparium, the stunning, three-story, stained-glass globe made in the 1930s of over six hundred glass panels. I wondered if Ruby Jane had ever seen it.

One afternoon I sat on the outdoor patio of Au Bon Pain in Harvard Square, reading the copy of Science and Health I had picked up in a used bookstore. Men played chess nearby, and pigeons strutted beneath the table. According to Eddy, prayer should be silent; loud prayer excites the emotions. Prayer as it is often practiced is not that useful; it tends to make us hypocrites, as we promise God things we can’t or won’t deliver. In any case, God knows our thoughts already.

This conception of prayer sounded sensible. Prayer should be silent, like the silence I was trying to coax out of my body through yoga and meditation. I shouldn’t make promises to be less anxious, just strive to be. One of my yoga teachers said, “You don’t breathe; the world breathes you.” Replace “the world” with “God” and the phrase would mesh with Eddy’s philosophy.

Indeed, it was striking how Eddy’s ideas dovetailed with so many of those made by the books and therapists who had tried to soothe me over the years. In a book on meditation, for example, the author said that he noticed a small lump on his neck and started to worry. The lump had been there for a while, but it wasn’t until he noticed it that he became afraid. In other words, his mind made him afraid, not the lump. Eddy would have concurred. She would have gone further and said the lump didn’t exist. Still, Eddy and this author shared a common solution: Stop thinking about it; think of something else.

I drank my coffee, listening to the chess players smack their timers. Maybe Ruby Jane could help me. Maybe I could conjure her when the fears threatened to overwhelm. Or when I was lying there, feet on the wall, willing the sperm to dance on up to the egg and get introduced. I didn’t have to become a Christian Scientist to recognize the value of positive thinking. Or to mentally rely on my ancestress, the faith healer.

•••

In July, we seemed to have timed the insemination just right. My mucous was stretchy; the ovulation predictor turned a positive shade of blue; David was punctual. But I didn’t get pregnant.

In August we agreed to try one last time. By now we weren’t awkward with each other, even as Karen and I returned from our walk. David could get his part of the job done in nine minutes. We opened the front door, and I joked, “My man!” He passed over the jar.

This time, we all knew that I probably wouldn’t get pregnant with David’s sperm. We smiled tenderly at each other, hugged. We said goodbye. Karen and I went into the bedroom, and I put my heels on the wall. All weekend afterward I cried and moped. It felt as if someone had died. I was sad for us, sad for David, sad for what could have been.

On Wednesday, I got in the car and drove the five hours from Seattle to Lewiston, Idaho. The trip took me through an area of southeastern Washington called the Palouse, a surreal landscape of undulating brown hills that rippled to the horizon. Driving through them was like winding through a maze with no obvious exit. Once I had emerged from them, I confronted the Lewiston Grade.

Lewiston is at the bottom of an abrupt two thousand foot drop from the plateau of eastern Washington to a valley where the Snake and Clearwater Rivers converge. The highway built in the 1970s smoothly descends to the city, but the old highway, called the Lewiston Grade, sweeps back and forth in sixty-four curves, an engineering marvel of its time. Both my parents, who grew up in the region, remember sickening ascents and descents of the old highway, so of course I had to drive into Lewiston that way. The disconcerting series of switchbacks, a trip Ruby Jane must have taken many times, made for an atmospheric entrance to Lewiston.

After checking into my motel, I went to the public library and found Ruby Jane listed as a practitioner in a 1941 phone directory. It gave me her address, and I drove to her house, a modest, two-story structure near the cemetery. The church she attended had been abandoned for a new one in 1965, so I couldn’t see it, but I still wanted to attend a Christian Science service in Lewiston.

I entered the church that evening hesitantly, wearing a dress purchased for the occasion—I didn’t otherwise own one—and hoping not to attract too much attention. A dozen people, mostly women, were sitting in blonde pews. I took a spot in the back. The early evening sun saturated the colors in the glass panes: red, purple, and an earthy, 1960s orange-brown. On the wall hung two quotes, one from Eddy—”Divine love always has met and always will meet all human needs”—and the familiar “Ye shall know the truth and the truth shall make you free.”

I had timed my trip to be here for the Wednesday night service, traditionally devoted to testimonies of healing. I wasn’t prepared for the coincidence of the evening’s topic: reproduction. A man sat at a card table in front of the pews and read passages from the Bible and Science and Health, passages which I later learned are chosen by the Mother Church and read at every service on that day throughout the Christian Science world.

One reading expressed the idea that children are not created from matter but from idea/mind. I listened, looking down at the place where my belly would swell if I were pregnant. If Ruby Jane were still alive, and if I had the courage to explain the inseminations to her, she would probably have said that my failures until now had been my fault, that I hadn’t believed enough. It was true that I had trouble believing I would get pregnant; it seemed fantastical that a child could coalesce out of cells swarming in my fallopian tubes. But hadn’t I done all I could, given the circumstances?

The reading went on, contending that parents must take as much or more care planning their children as they would propagating crops or breeding livestock. This language was straight out of the eugenics movement, a popular effort in the early twentieth century to “purify” the human race; it used the cover of science to mask its racist, homophobic, and anti-immigrant intentions. If I had needed some prompt to help me better imagine my great-great aunt’s time, this was it. Ruby Jane had probably believed in eugenics, and she would have been horrified by my request for help with my fertility. Not only was I a lesbian, but the father-to-be was the son of immigrants. Better, she might have said, to let this opportunity pass.

I listened with growing skepticism to the testimonials that followed the readings. One woman got over a headache by reading the Statement of Being. Another said she had been praying about the recent bombings of U.S. embassies in Tanzania and Kenya. She didn’t like Muslims—Hindus were okay—but she was trying to love universally.

A third woman said her child had felt fine during the week but something strange had appeared on her face. The girl didn’t understand why she couldn’t go outside to play. The mother put her in front of the mirror and said, “Do you want people to see you like that? No? Then you will stay inside until you look the way you want people to see you.” Surely the girl had chicken pox. And surely the mother knew she was contagious but couldn’t admit it. What a twisted way to deny disease.

My romantic obsession with my great-great aunt ended right there. Ruby Jane was probably only as wise as her time and place allowed; we probably wouldn’t have liked each other. At least, we wouldn’t have agreed on much. I had come to Lewiston to learn the truth, and the truth had set me free.

•••

My period arrived that month as usual; I would never get pregnant. I continued to work on a novel inspired by Christian Science, but it would go nowhere, even when I ran across the story of a woman, a contemporary of Eddy’s, who got pregnant when her husband was out of town and claimed Eddy was the father. A lovely twist on lesbian insemination.

Karen and I broke up a year later, for reasons unrelated to the pregnancy attempt. As I tried to understand why I had gone through insemination despite a lack of maternal urges, I came to understand that having a child with David, friend of Wendy, was a way to create an extended family, whether the members of that family were genetically related to me or not; I wanted us bound to each other, loving unconditionally, the way families are supposed to be.

When I considered the pleasures of childrearing, they weren’t what most mothers probably think of first: the cuddling, the joyful giggling, the birthday glee. Rather, I was thinking of a community of relatives and friends joined by the connections among our children. I imagined sharing coffee with other parents while our children ran in and out; imagined barbecues and croquet games and badminton; imagined roving holiday feasts. What I was remembering was the community my parents had made at a midwestern university when my father was on tenure track there. The most fun I ever had was darting through the parties of drunken academics, like the summer party where the associate dean roasted a sheep in his backyard or the winter party where the anthropologist taught me to fold wonton skins. That is, it wasn’t a child I wanted but a community, and my insistence on a known donor was related to that desire.

My obsession with Ruby Jane was related, too, to a desire for connection, one that stretched back through time and ancestry. She represented a visionary woman, someone on whom I could call for strength and clarity. But ultimately, I realized that whatever genetics we had in common, we probably didn’t have much else.

Some years after my last insemination attempt, Wendy called one June afternoon to say the baby had almost arrived. I raced to the hospital and ran into the room just a few minutes before Eva’s little head and gangly body emerged. The midwife handed Eva to Wendy’s husband, and we all smiled, breathless and awestruck. Every year thereafter, I have been invited to Eva’s birthday party. And the children run in and out, and the adults drink wine, and the party goes on well into the evening.

•••

ALLISON GREEN is the author of a memoir, The Ghosts Who Travel with Me (Ooligan), and a novel, Half-Moon Scar (St. Martin’s). Her essays have appeared in The Gettysburg Review, Utne Reader, Calyx, The Common, and other publications. Web site: allisongreen.org.

BabyShusher

By Natalie Singer-Velush

To become a parent in a hospital in a city somewhere in the United States you hear: Beeping machines, the institutional whir of apparatus such as a metal birthing bar that automatically lowers from the ceiling with the click of a switch, the squeak of rubber-soled shoes on linoleum sheen, the medical snap of a glove pulled on, the growl and roar of a woman who you are later surprised to learn is yourself, the knuckled clenching of her hands on the metal bar, a pause of silent fear, the bleat of an up-to-the-minute new, miniscule person.

To raise an infant you understand that you must become the owners of mountains of items, gear, devices, such required equipment as strollers (newborn carriage; upright jogger; portable umbrella stroller; add-on car-seat click tray with SafeAssure™ technology), vibrating bouncy seats, bottle warmers, feeding timers, car-seat adapters, and automatic milk pumps. This gear helps you transport, feed, comfort, but it also must be parented in turn—assembled, folded, stored, charged, disinfected, adjusted. You have a whole catalogue of new children now, littered around the house.

You hear: The din of advice from family, advice from friends, advice from co-workers, advice from your husband’s boss, advice from mommy bloggers, advice from elected representatives, advice from newscasters, from grocery clerks, from Twitter, Facebook, Instagram, the hated Pinterest, advice to slow down to rock her to sing louder sing more softly to bathe once a week at maximum to vaccinate right away to wait to let her cry try gluten free soy free dairy free to switch detergents, but whatever they say you infer what they all really mean is, never let anyone see your nipples.

As you learn a new, completely clock-worked dance with your partner, there sounds the tinkle of a very old tune, perhaps a Scottish fiddle song, to which couples have been swirling for centuries and the days roll into nights that collapse into days that become nights and you realize at some point that you are not really sleeping or even touching each other at all because she eats and cries a lot and life while beautiful is not really a Scottish fiddle tune but now more of a platonic Metallica marathon.

Someone advises you buy a white noise machine. You learn this is a lunchbox-sized device, available at all baby superstores, takes four AAA batteries. On one end of the cloud-colored box is a speaker, on the other end is a dial that adjusts to the settings: BIRDS, OCEAN, WIND, RAIN, HEARTBEAT. That night after swaddling the baby in the style passed down to you by the ancient tribes, you lay her in her bassinet and your partner switches on the white noise machine, which he is calling the noise maker (this would be funny to you—he never gets the names of things quite right—except that you are too exhausted for funny). He moves the device to the loudest setting and the baby’s crepe paper eyelids leaf down obediently.

In your own bed you lay flat on your back like the mummies, arms by your sides, and you hear the white noise of the noise maker floating down the hallway and into your airspace, sidling up to your ear, rolling in, an auditory fog that lulls you quickly into your own twilight sleep. Next to each other, holding your breaths, your pinkies brush.

It works. Your daughter is approaching a trimester old now, and she can get her frequency turned up pretty good (colic, they say, or reflux). The magical combination, you have finally discovered, is to turn the bath tap on as soon as the fall sun sets. You sit on the edge of the tub with your tiny person and your sore, flappy body parts, listening to the rush of the bath filling. Her face is out of this world, from another place you’ve never heard of. Her eyes are open more often these days; she looks like an endearing alien, all shock and pucker. In the tub, you cradle her sideways and latch her onto your breast. The tap is still gushing, baby gulps drowned out. It must sound to her like she is eating inside Niagara Falls, or somewhere more familiar, her former planet.

After the bath meal, drying off, the laying of hands, lotioning, swaddling, rocking, shushing, she is placed in her cradle with the noise maker on high. You have become loyal to the OCEAN setting. It works every night, despite the creeping feeling that this enchanted solution could in fact fail any minute, leaving you back in Metallicaland. You and your husband steal into your own bed down the hall. The synthetic, looped surf pipes in through the crackling baby monitor, which has a transmitter in the baby nursery and a receiver placed three inches from you on the bedside table. A fake ocean filtered through a transmitter carried by invisible radio waves, pushed through a plastic speaker into your ear, soothing you all, with a manufactured quiet, into the natural state of sleep.

One night at the end of that first trimester of parenting, you lie in the bed and think suddenly it must be time to give your body back to your partner, to yourself. You hear the faint remembering of a previous system of connection, long slow sessions of fusion, swift slam of thirst-slaking, rustle knock tear knead soft moan all that fucking. As the battery-powered waves roll onto their radio beach you reach for each other, sift around, try to be the way you’ve been before. But your body is an alien, come from a place as out of this world as your daughter. It is in its inchoate state, too, a nautilus. The lull of the ocean of rest is so loud that you cannot hear your foreign body at all. You return to your arrangement as mummies, bound together, and drift off.

More weeks pass. The baby settles in, acts more and more like she might stay around. You hear everyone tell you how to navigate—buy this brand of sippy cup, ask these questions when interviewing day cares, lay her down at this angle to prevent unexpected crib death. A turbulence. But quiet, too, is terrifying. Alone at home with the baby all day, you use as many devices as you can. The TV is turned up. The Internet always there. Tea kettle, radio, coffee pot, the toaster’s glowing coils and companionable ding. A swing that oscillates. Tesellating mobiles.

The energy of the earth is a circuit from pole to pole, you realize: zings and jolts supplying the system, sometimes knocking things out, towers and wires strung over the hills, in and out of houses, of hearts, of tiny pink mouths, an electrocuting love.

One night sleeping to the looped white noise of OCEAN, you dream a memory of the real ocean. You are a girl, about eight, visiting your grandparents in Florida. You have your own bedroom facing the Atlantic, which is about 150 feet from your windowed wall. You lie in bed at night, the giant breath of the sea inhaling, then crashing, in the black just outside. This, the ocean’s waves, its body, shushing, thunders over you, three-dimensional sound, wet and gaping. You remember.

Your daughter a couple of months older now. The world is still talking at you about how to be her mother. The strollers and wipe-warmers have made room, too, for toys―blocks that play “Old MacDonald Had a Farm” and baby dolls that go “waaaah.” It is getting busy in the house. You pack a box, items you feel you should let go of, to make room for other items, board books, doorway bouncer, something called a play mat (monographed)—the catalogue children helping you to raise the organic one. You place the noise maker on the top of the storage box.

That night the three of you lie in the mysterious new quiet. The sheet bunches. The baby whistles unconsciously down the hall. A neighborhood dog howls. You hear the zzzzzzt of desire click on, like the buzz of conductivity when a wire in the dark canister of a device brushes against its charged opposite, the sound of a current in a bedroom somewhere in the United States in a house in the suburbs.

•••

NATALIE SINGER-VELUSH is a journalist and writer of creative nonfiction. Her creative work has appeared or is forthcoming in the Washington Post; Brain, Mother, the blog of Brain, Child magazine; Literary Mama; Alligator Juniper; Clamor; This Great Society; Huffington Post; and the 2015 anthology Love and Profanity. Natalie is the editor of ParentMap magazine, where she also writes about parenting issues. She is earning her MFA in creative writing and poetics from University of Washington and lives in Seattle with her husband and two children. She can be found @Natalie_Writes.